Search for:
Reclaiming Neurofuturism: Understanding neuronormativity and the containment of Autistic experience

Much of western society is predicated on the idea that knowledge consists of a variety of objective truths. When we hear the word “disability” or “autism” we are guided to understand the word in a particular way. This unfortunately fails to capture the dynamic and highly contextual nature of human understanding. Neuronormativity, then, is an attempt to remove context from human neurological experience.

The creation of worlds

Knowledge is socially constructed. Each word we speak carries with it the effect of each interaction we have had with society. When I state that I am Disabled or Autistic, I inevitably will have a different understanding of what I mean than the meaning you will draw from it.

The space between the context of our understanding can be conceived of as the space between worlds. While our world may carry striking similarities, we can never objectively prove that they are the same. Rather than occupying a shared reality, we create contextual worlds that may cross boundaries with each other in places.

Neuronormativity and the elimination of context

When I consider normativity that is directed toward our embodiment and experience of the world, I see the death of context. Neuronormativity is that clandestine effort to label some contextual worlds as “wrong” and bolster some as “closer to the truth”. What is important here is that while neuronormativity claims an objective truth to one’s neurocognitive machinations, no human ever achieves the objective truth that it claims to hold.

Paradoxically, neuronormativity creates a world devoid of context, where one can never actually satisfy the truth of the matter. All humans fall below standard to some extent. Of course, some of us have more privilege than others, but importantly, we are guided to always strive to achieve an inaccessible truth. Regardless of our contextual world.

The contextual nature of Autistic experience

Perhaps one of the most pervasive and harmful applications of neuronormativity’s erasure is within the lives of Autistic people. Autistic experience is highly contextual, with an infinite number of ways that people can respond to and understand it. Neuronormativity seeks to erase any context within the Autistic experience that positions our existence as something other than a problematised one.

Each Autistic performance creates a contextual world of meaning. What we summarise as shared experience is actually the liminal spaces where one person’s contextual world crosses into another. In this sense, each Autistic person represents a point within a rhizomatic network, from which shared context can become community. Neuronormativity seeks to reset those liminal spaces, and enforce a generalised context. Neuronormativity is the death of our reality.

Neuronormativity is the death of community.

Reclaiming Neurofuturism: Autistic embodiment and the enactment of neurodivergence

When we seek to describe our Autistic and otherwise neurodivergent selves, we tend towards discrete categories and observable definitions of what we mean. However, to be Autistic is more than a diagnostic category; while Autism is a defining part of my experience, I also enact neurodivergence. My embodiment gives definition to what people mean when they use words like Autistic, ADHD, AuDHD, or Schizophrenic.

Performing Autism

Tweet grom @simonharris_mbd

Like any of the diagnostic categories that have been assimilated into my identity, I perform them much in the way a neurotypical performs neurotypicality. Unlike the diagnostic criteria that bestowed these identities on myself, my performance is not containable. Every word that passes my lips, every action that my body makes; my existence gives meaning to the word neurodivergent. We often hear:

“When you’ve met one Autistic person, you’ve met one Autistic person.”

Unknown Author

I, however, would go one step further. Through our embodied relationship to the Self, we become autism. In the same way, I have become ADHD, and I have become Schizophrenia.

Queering the diagnosis

Autism does not exist as a separate entity, it exists as the embodied performance of ourselves. We choose the meaning that our identity has. We don’t have to be the Autistic that everyone else expects; through our performance of Self, We can redefine what people mean when they use words like Autism, Autistic, or neurodivergent.

We are both the writers and the actors in the performance of our neurodivergence. It is our job to deconstruct the politicised Autistic identity and replace it with the embodied and fluid definition that one might only find within the Chaotic Self. To word it another way; if we perform autism, that performance will change and evolve with each interaction with our environment.

Concluding Remarks

This lays a significant responsibility upon us as both individuals and a connected community. If we are redefining the meaning of autism and neurodivergence, it is on us to ensure that its definition is neither exclusionary or repulsive. The meaning of autism is written on our bodies, and we choose the words that write it into being.

We must strive toward a future free of the dichotomous standard of “meets diagnostic criteria” and “does not meet criteria”. Only when we break free of our politicisation and medicalisation can we truly explore the endless possibilities of doing autism.

Yes, being Autistic does define me

Some years ago, I wrote a similar article for Neuroclastic. I thought perhaps now was the time to revisit the topic with several years more experience under my belt. Too many times I have been told not to let my “autism” define me, that I am something other than Autistic.

So, yes, being Autistic is a defining feature of who I am. This isn’t to say it is the only defining feature, but it is a core part of my identity. Of course, it is more than an identity to me. Much like my being ADHD and Schizophrenic, it defines my relationship to the universe surrounding me. I imagine my Autistic brain as a singular point, an event horizon within which all things become Autistic.

When I wake up, I do so Autistically. When I hold my son, I do so Autistically. When I breathe my last breath, I will do so Autistically. Autism is not a separate entity that inhabits me. I do not carry my autism as one might carry a brief case. My autism is the words I write, the thoughts I think. Autism is the way I feel. Autism is the way I love.

I am David, and so is my autism. If I were not Autistic I would not be David.

When others ask me not to be defined by “my autism”, they are asking me to cease existence. I have no existence outside of being Autistic because everything I do, I do as autism. As Autistic people, we are the point at which autism stops being an abstract concept and instead becomes a living, breathing human. My humanity is Autistic, and I will never know of non-Autistic humanity.

I can not tell you what it is like to be Autistic in a way that you can fathom unless you also are Autistic. Autism is all we know. We have never been anything other than Autstic. Even when I queer my neurology and seek a new way to exist, I do so as an Autistic person. My autism is exploration. It is expression of Self that can not, and will not, perform typicality.

So, do not ask me to define myself outside of autism. To do so is to ask me to define myself outside of my existence.

What being Autistic has taught me about attitudes towards mental health issues

Autism and mental health. There are those who will tell you that the two are separate. Autism is not a mental health problem, with the underlying implication that mental health can’t be the realm of neurodiversity. However, it is not that simple; what we know as “mental illness” has been positioned as such for a reason. Autistic people are privileged that our community is making space between autism and illness, but what of those whose neurology is still widely pathologised?

How many Autistic people have a mental health problem?

Finding accurate estimates on this are difficult for a number of reasons. Chiefly, studies only look at those who have been formally identified as Autistic, ADHD is usually included as a mental health problem (more on that later), and they also do not account for the many Autistic people excluded from the knowledge of their own “mental health issues”.

What I did find was that Autistic people are much more likely to have co-occurring mental health issues. It is important to note this as it sets the scene for why this is an important topic to Autistic people.

How “mental illness” mitigates the benefits of the neurodiversity movement

Autistic people have spent decades trying to liberate themselves from the pathology paradigm. While that work is not complete, we are significantly distanced from pathologisation compared to half a century ago. The pathology paradigm, however, is insidious, and slows our progress in other ways.

Autistic people experience much higher rates of trauma than the general population. Trauma almost inevitably leads to mental health issues. From depression to psychotic disorders; these diagnoses keep us tethered to the systems of the pathology paradigm.

Consider that innocuous name; “mental health”. Health has long been the remit of the medical establishment, which itself is a tool of the pathology paradigm. This creates a dependent relationship between the “mentally ill” Autistic person and the medical world. While we work to liberate autism, we have allowed ourselves to be chained to the very system we seek to escape.

The oppressive systems of the world have done a very good job as well. Even insinuating that “mental illness” isn’t actually illness can bring you backlash from various groups and individuals. The world has just accepted that this very human reaction to suffering is something to be eradicated. We have become complicit in our own oppression.

How do we escape this?

Think back to my earlier comment about ADHD being included in studies of mental health. Neurodivergent people almost all agree that ADHD is not a mental health issue, and yet researchers and medical professionals still position it as such. This, along with the ongoing liberation of Autistic identity, proves that an identity is only a psychiatric disorder while we allow it to be.

Never forget that homosexuality was also in the DSM at one point.

We have to recognise that what is viewed as mental “illness” is acquired neurodivergence. We can’t have this discussion, also, without mentioning the immense monetary value of the concept of “mental illness”, particularly in the Western world. We have created an environment where it’s become okay to take away a person’s right to consent to medication if they are deemed mentally unwell enough.

We need to give our mental health the same treatment that we give our being Autistic. We need professionals to effect meaningful change in our lives. Not just prescribe us medicine. I am not in any way saying that medicine doesn’t have its place. The antipsychotics I take have become an important tool for managing my traits in a world that can not accommodate them. What I am saying is that we need to tackle the issues that cause psychological distress.

Autistic people are weighed down by their own oppression because we have been told it is illness. The blame has been shifted from a neuronormative society and placed onto those injured by its violence. If we as Autistic people want to be free of the pathology paradigm, we need to be free of all systems of oppression.

Neuroqueering education through rhizomatic community networks

This article exists, in part, thanks to the ongoing discussions in my Discord server. You can join by clicking here.

When considering the pervasiveness of neuronormativity, nowhere is it more visible and prevalent than in the education system. Educational institutions place a great deal of pressure on students to engage with behaviour policies, uniform policies, curriculums; more so, they define not only how one should learn, but how one should embody that learning and the ways we think about that learning.

Schools are, for the most part, completely ill-equipped for students who can’t conform to the restrictive ideals placed upon them by a school and institution that functions as a machine, creating apostles of our neoliberalist economy. Far too many children are traumatised and subsequently excluded from their human right to education because of the normatively violent approaches of the education system.

So how might we subvert and redesign education?

I have spoken recently of rhizomes. Vast networks of points that are connected while remaining independent of each other in terms of their survival. Such rhizomatic communities take a post-structural approach to the creation of community and the sharing of knowledge by ditching hierarchical notions of milestones and targets and instead allow us to take an interest-led approach.

Allowing communities to form around mutual interest creates different points within the rhizome. Through exploration and knowledge exchange, intrinsic connections form through the understanding that all knowledge is inherently connected. This is the basis of how one might queer the education system.

By allowing people to engage with interests and learn through that which they are intrinsically motivated to explore, the natural connections between points in the rhizome can be used to expand learning into other areas while maintaining and interest-led approach. Such a world would have no need for institutional education as knowledge creation and sharing would be a community endeavour.

Everyone would be the educator and the learner.

Some may worry about the standard of education that a person can achieve outside of the traditional institutional structure; truthfully, how much of the knowledge you hold now was attained within the walls of a school? Most learning is community based. School systems offer a very limited basis of knowledge that often seems pointless thanks to a lack of context.

Education should not be reliant on normative standards of teaching. We should be empowering each other to share the knowledge that we gain over a lifetime. Such a world would take us away from the self-reliance of our current society while allowing us to retain our individuality. Through a rhizomatic network of learning, we create a multiplicity in our individual existence that can not be achieved within the confines of the institution.

For access to bonus articles from David, check out David’s Divergent Discussions. Click here for 50% off your first year.

Reclaiming Neurofuturism: Rhizomatic communities and the Chaotic Self

I have recently begun to explore the idea of the Autistic Rhizome as a futurist ideal of what the Autistic community could look like. In this concept, we explore communities that exist of networks with no single point of origin. They are interlinked but not dependent on one another for their existence.

You can read more about this here and here.

Co-existing with this idea is my concept of The Chaotic Self, which I first discussed in my book A Treatise on Chaos: Embracing the Chaotic Self and the art of neuroqueering. This idea position’s the Self as a fluid entity, constantly changing with each new interaction, making one’s identity as changeable as your hair colour.

What I would like to consider is the interplay between these two concepts.

If we consider the Autistic Rhizome, we are connected to one another either directly or indirectly. We are not independent of each other, but also do not rely on one another for our space in this rhizomatic network. What happens when we queer our neurology and alter our sense of Self?

As the Chaotic Self alters and grows, its relationship with the rest of the rhizome is altered. This affords it a different set of interactions and experiences, which in turn queers the Self further. Due to the interconnected nature of such a rhizomatic network, neuroqueer theory becomes farther reaching than ones own neurology. By queering ourselves, we are queering entire sections of humanity.

One could assume that at a certain degree of separation within the network, our reach is stifled, but as we queer ourselves, the relational change with our immediate environment transfers the process onwards to the rest of our community in somewhat of an u predictable manner.

Perhaps then, the argument could be made that if we want to alter society, we must first alter ourselves. When Walker (2021) tells us to “throw away the masters tools”, we must realise that we are the masters tools. Society has made us complicit in our own imprisonment. To throw away the tools means queering ourselves on a fundamental level. We must become different on an individual level and, in turn, alter the world around us.

As such, to embrace the Chaotic Self requires us to embrace the rhizome. We must recognise that any change to our own embodiment and subsequent relationship with the environment alters more than our inner world, it has knock on effects for the human collective, that itself is an ever-changing, amorphous entity.

Further Reading

Neuroqueer Heresies by Nick Walker

A Treatise on Chaos by David Gray-Hammond

I also recommend becoming familiar with the work of Delueze and Guattari for a broader understanding of some of the motivations behind this post.

Reclaiming Neurofuturism: Decolonising the Autistic community

Community is somewhat of an abstract concept. It is an adjective for a group that has a shared identity. It comes with rules and politics that dictate how one must carry themselves. There is a dichotomy of insider and outsider within communities, often dictated by agreement of the communities politics. Those who don’t conform are ejected.

The Autistic community is not immune to this. Deleuze and Guattari, I imagine, would see the Autistic community as a machine. One enters the community, working their way through it until they achieve the title of advocate. There is a power imbalance between those that advocate and those who choose to remain quiet in the public domain. As advocates, we largely write the rules of our community.

I have previously written about the Autistic Rhizome in the context of neuro-anarchy. I envision this as an interlinked network with no point of origin. Each point of interest on this map of communities is linked with the others but independent in the sense that they do not require each other to exist. I explored this in an article for Stimpunks Foundation.

The Autistic Rhizome is decentralised. It has no goal other than mutual knowledge exchange and support. Rather than creating colonised communities engaging in separatism, they are nomads. Within the Rhizome, we explore the topography of neurodiversity while respecting each culture that we encounter. In my opinion, the evolution of an Autistic Rhizome is the first proper step towards a neurocosmopolitan society.

We can create communities through realising the connections in our individual nature.

This allows us to begin dismantling the structures we have built (out of necessity) using the masters tools. We can create a new community away from the colonial influence of our normative society. In this sense, these growing networks are queering the meaning of community through the rejection of hierarchy and the balance of power.

Like any new endeavour, it has the potential for mistakes to be made. One must accept that exploration comes with a few wrong turns, but as long as mistakes can be corrected in good faith, we can create a new kind of community.

This is the thesis of neurofuturism. To create a new culture and community.

Subscribe to David’s Substack for bonus articles, and don’t forget to join the Discord Server and check out David’s books.

Neuro-anarchy and the rise of the Autistic Rhizome

Before we start, I want to go over some terms that will be covered here.

Neuro-anarchy: as conceptualised by Katie Munday, I use this to refer to to the decentralisation of hierarchy as it pertains to neurocultures such as that of the Autistic community. Munday and I co-authored an article on this here. Neuro-anarchists arrive at this position by existing on the fringes of their own communities and challenging the politics within them.

Rhizome: as conceptualised in the work of Deleuze and Guatarri. A network with no single point of origin. No part of the network depends upon the existence of another. I have introduced the idea of this in the context of community here.

When considering the nature of the neuro-anarchist, one could be forgiven for expecting to see Autistic people clad in post-apocalyptic garments decrying the existence of government. Some of us are like that. However, some of us look like this;

Image of David. A white, Mediterranean, masculine person with a shaved head, thick rimmed glasses, lip piercing, and an ear tunnel. David is wearing a waistcoat, white shirt, and tie. He is sat at a covered picnic table.

Neuro-anarchy as a concept is important. In any community built upon identity, identity politics come into play. Humans have this bizarre tendency to look for leadership, and when they find it, they will often defend it, even if it is overtly harmful. Neuro-anarchy, however, invites us to consider the nature of that leadership and whether the hierarchy of our own communities serves the greater good.

Allow me to elaborate.

Humans are fundamentally neutral. We are equally as capable of tremendous evil as we are of a beautiful good. We are not born naturally good or evil. That is an identity given to us by the sum of our actions. However, the tendency to create community hierarchy means that some members of the community sit in a position of power over others.

Neuro-anarchy seeks to rebalance the power dynamics of a given neuroculture, allowing for mutual exchange of knowledge and support.

Enter the rhizome.

On discord, there is a growing network of communities. I have lovingly dubbed this collective The Autistic Rhizome. They are an interconnected network of knowledge exchange, and mutual aid and support that have displaced the hierarchical nature of advocate/follower relationships.

We are equal in these spaces.

This doesn’t mean that all knowledge shared is useful in advancing the neurodiversity movement. Like any knowledge, some is good, some is bad, most is somewhere in the middle.

This growing network consists of communities that do not depend on each other to exist, but are still enriched by their interconnection. There is no starting or end point. There is no advancing through communities based on levels of knowledge. They just simply exist, and people come and go as they please.

I personally feel this is neuro-anarchy on action. We have decentralised the Self and become a collective. We are connected in the neutrality of our individuality.

There is somewhat of a liberated feeling within the Rhizome. It feels safe.

I strongly believe this might be the next step for growing our communities. A rhizomatic network of free thought that considers each member equal. The ethos of “do no harm” is a wonderful thing.

If you want to check out the Autistic Rhizome, you can join my server and no doubt explore into others!

Don’t forget you can support David’s work by purchasing a subscription to his Substack and purchasing his books.

Reclaiming Neurofuturism: Neuroqueering knowledge and its production

In a previous article, I discussed the idea of verisimilitude. I discussed how we might never find an objective truth that explains neurodivergent experience. In fact, we might never find one for human experience on the whole. What we can do is seek a falsehood that is close enough to truth to seem true, it has verisimilitude.

One of the flaws in this is the arborescent approach to knowledge creation that this takes. We are constantly building on previous knowledge. Our foundations are rooted in the past. However, if we accept the verisimilitous nature of all knowledge pertaining to neurodivergent experience, then we must accept that there is a good chance that prior knowledge is a falsehood that seems true.

This presents an issue. If the foundations we branch out from are unstable, the metaphysical structure of our knowledge is one doomed for collapse. I believe we need to move beyond the roots and instead create new knowledge, not by abandoning the past, but by utilising it in a way that no single part depends upon another.

One might pontificate that knowledge exists to evolve, but what if we approach knowledge as being independent of its purpose. Rather than measuring knowledge by its reiteration and resilience in the fave of scrutiny, we can view it as interconnected while retaining its independence.

Can we create new knowledge through linking networks of knowledge that are seemingly unrelated? How might one approach the creation of knowledge in a way that does not depend on antiquated thought?

Knowledge is a by-product of thought, which itself is a by-product of the bodymind. If we desire to queer knowledge, we must first queer the bodymind. This requires us to abandon the politics of our own existence and instead explore our own reality.

Through exploration of the Self, we are able to tweak and alter the bodymind. This, in turn, will alter our thoughts and, thus, knowledge production. By abandoning the arborescence of our own thoughts, we can abandon the roots of antiquated knowledge.

To liberate humanity, we must liberate thought and knowledge. We must escape the branching nature of our current system of knowledge and instead explore the coherence of our entire knowledge base rather than focusing on small details. When we can embrace the connectivity of everything, we can wield knowledge as the tool it should always have been.

Normative society has standardised thought to control the direction of knowledge. To be free of normativity, we must first free our thoughts and knowledge.

Don’t forget to check out David’s new book Unusual Medicine and subscribe to his Substack!

Neurodivergence, disability, and the politics of existence

Neuroqueer theory has been the single most important idea to emerge from the academic circles of neurodiversity into my own life. I say that with a hint of irony; neurodiversity is my life. It’s all our lives. Neurodiversity is a fact of human existence. Yet, to not perform to a cultures normative standards, neurotypically, is a disability.

The cold, hard truth of being neurodivergent is that you are disabled. This doesn’t mean that there is an issue within your body that requires fixing. It doesn’t mean that you are worth less. It does mean that the world will be a harsh place.

This is particularly problematic for those who engage in neuroqueering. The further away from that pinnacle performance of neurotypicality that we get, the more labels of pathology that society will paste onto us. To diverge from normality is to have a relationship with the world that is, at best, indifferent to your pain and, at worst, violently hateful.

In my own opinion, this has to do with the way that society frames deviation from the status quo. As soon as we decondition ourselves or fail to assimilate, we are dehumanised and discriminated against. We are told that our experiences are not valid and that our pain is our own fault.

This neatly absolves the powers that be of any responsibility for the suffering they inflict on neurodivergent people. Disability (to my mind) arises not only from obstacles in the environment but also from volatile and harmful relationships within that environment.

One of the most disabling things about being neurodivergent is the way that society frames our existence.

Our existence is able to be framed as such because there is a distinct power imbalance in our world. It’s not enough to tackle ableism and autistiphobia. We must also dismantle the bigotry and oppressive system that have infected and affected our society en masse.

You can not tackle disability as an issue without tackling white supremacy, homophobia, transphobia, or any form of bigotry. We have to decolonise in order to make the world accessible. All of these forms of hatred and discrimination play a role in the way that neurodivergent people are framed by society.

This is the nature of difference. Because society has a toxic relationship with difference and diversity, we are disabled for not assimilating.

The time has come to not just queer ourselves, but queer society. By abandoning the false hierarchies created by our capitalist systems in the west, we can embrace the anarchy of bringing the fringe to the centre. We can start this in our own communities by Embracing neuro-anarchy and breaking free of the normativity within our own circles.

The first step to decolonisation is to look inwards at our own environment.

We need to consider what parts of neurodivergent culture are helpful and what parts have arisen from the politicising of our existence. We can give rise to a society that is kinder to all, a world where difference is not a disability, but the first step is to realise our own role in that oppression.

Get access to extra content by purchasing a subscription to my Substack.

Verified by MonsterInsights