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Neurodivergence and Normality: The meaning of words

“I understand now that boundaries between noise and sound are conventions. All boundaries are conventions, waiting to be transcended. One may transcend any convention if only one can first conceive of doing so.”

Cloud Atlas by David Mitchell

The neurodiversity movement is predicated on three deceptively simple ideas:

  • There are as many variations of the human mind as there are humans.
  • Those who can not perform to neurotypical standards are neurodivergent.
  • Neurodivergent people deserve equity and inclusion in our shared environment.

Upon this premise, an entire collective culture of shared knowledge and community-connectedness has blossomed. Creating spaces where neurodivergent people have, for the first time, felt they belong. For many of us, including myself, it has been not just life-changing. It has saved us from an early demise.

But what is neurotypicality? What is it exactly that we diverge from?

Neurotypicality is a performance. It is a set of normative ideas that we have come to accept as “normal”. While those normative ideas my change based on the local environments culture, the truth remains that the word “normal” has been weilded as a weapon to justify the dehumanisation and oppression of all who can not, or will not, assimilate.

Normality is itself a social construct. It is an abstract entity. It is not measurable or tangible. While one could argue that normality is a word that represents that which most have on common, we could just as easily have given it the opposite meaning.

All words are essentially meaningless. The objective truth of a words meaning is something of a social contract between ourselves and those around us. For the context of this essay, let us take normality or “normal” to mean the most commonly found attributes of a given population.

In this sense, Autistic and otherwise neurodivergent people are abnormal. We have diverged from normality, representing what is framed by wider society as an aberration in the status quo. On the basis of this, a global industrial complex has risen up in order to not only force our assimilation into normality but also turn that endeavour into a profitable business.

How does one move forward when the world is at odds with your existence?

Even in neurodivergent communities, we frame ourselves through our differences. Celebrating the idea that we are different to that which normativity requires. While their is beauty to be found in such an existence, I believe that we must transcend the limitations of normality. Not through our difference, but instead by our assertion that “normal” does not exist.

We are not different because of our lack of normality. We are different because we embrace individuality and diversity. The difference between normality and normativity is semantic in nature. Normality is the attractive package that is gifted to us to take into our home. We must challenge normativty at its core and not at its surface.

To move into a post-normal society, one must first be able to conceive of such a place. We must establish new boundaries that turn the sound of normality into background noise. Drowning out normative beliefs with the voices of those that refuse to assimilate.

This, of course, presents a problem for not just neurotypical society but also neurodivergent communities. Even in our own culture, there exists a kind of essentialism in the idea that you are either neurotypical or neurodivergent. In a post-normal world, words like “divergent” and “typical” become redundant. If we have no preconceived notions of normality, then there is no need for a counter-culture. There is nothing to assimilate into.

Such a world would allow for the emancipation of neurodivergent communities but fundamentally alter the meaning of what it means to be neurodivergent. We would not be connecting over our differences but rather our shared culture. Such culture is difficult to quantify at this stage because we still have a long way to travel.

For now, this kind of neurofuturism may sound naively utopian, perhaps even dystopian, depending on your outlook. If I can be sure of one thing, it’s that it’s time for us to conceive of a world beyond normality. It is the first step on a journey toward a world where the oppression of neurodivergent people is no longer possible.

Drug use, addiction, and neuroqueering

I have extensively explored my Autistic relationship with addiction thus far. I have considered and lamented the inappropriate treatment services, the suffering, and rejoiced in the moment that I came out the other side. I have listed numerous reasons that contributed to my active addiction, but what I have not done is really drive home the core point of why I kept coming back to drugs. I need you to know what gave me that drive to persevere with something that could have very well cost me my life.

I was undiagnosed Autistic for the first 26 years and 7 months of my life. I know that many, if not most of you, will understand the isolation and alienation that comes with such an existence. It seemed as though everywhere I turned, I was met with condemnation and assertions of my inadequacy. It extended far beyond bullying. It was more than abuse. The world taught me that who I was, the very essence of me, was only as valuable as my ability to assimilate into the culture of my local environments.

I had never wished to enter into the culture of normality. I felt that my lack of desire to fit in reduced me to a non-person. In a world where I could be anything, I would give anything to not be me. My fluid identity was more akin to vapour at this point than it was to any tangible form. Society constructs our sense of Self through our interactions with the environment. My environment rejected me like a gangrenous limb.

Perhaps then you can start to see where the twisted beauty of drugs seeped into my life. Not only could I alter my perception of the environment, but I could also alter the way those in my environment perceived me. Different drugs allowed me to put on and take off identities like clothes. They allowed me to explore the inner workings of my mind. I could manifest the Self in whatever way I saw fit.

Much like the sculptor trying to free the art from its marble prison, I was able to shed the constraints of human thought. Drugs allowed me to rewire my bodymind. I was no longer the necrotic manifestation of the universe, but instead the explorer. I was attempting to neuroqueer without even knowing it.

Sadly, this lifestyle was not sustainable. In order to explore the fluidity of one’s identity, it is necessary to be at some level of peace with your Self. At least in my experience. My attempt to neuroqueer my way to peace was fundamentally flawed. I wanted to subvert myself, not normative attitudes. I was trying to diverge into neurotypical performance.

Perhaps that is why I kept returning despite the dangers. Neurotypicality was a performance that I could never manage. What is it they say about try8ng the same thing over and over and the definition of insanity?

The irony in this story is that at almost seven years of tee total sobriety, I can now see that my journey through that time has actually made assimilation not just less possible; The thought is abhorrent to me. For my safety now, I steer clear of “recreational drug use”. My days as a self-confessed psychonaut are over, and quite honestly? I’m okay with that.

Some people falsely believe that addiction is an illness. Personally, I believe that given the right environmental ingredients, it becomes an inevitability. For me, addiction has been a necessary evil. It was necessary for me to deconstruct the Self that had been built on the rotten foundation of subjugation and childhood trauma. That deconstruction allowed me to make space for the infinite possibilities that lay within my neurology.

The world needs us to regularly deconstruct that which society has built. It’s often a violent and painful process, but necessary as we explore what it means to be neurodivergent. Perhaps more so, what it means to be human.

If I could ask one thing of you, dear reader, it is this; when you see a person suffering, do not offer them vague pity and generic platitudes. Offer them your hand to place a new foundation, upon which all can stand to explore the fluid nature of human identity.

Latest updates on my books!

It’s been a hectic time since I published my first book at the beginning of November 2022. I have worked hard to get The New Normal: Autistic musings on the threat of a broken society out in the formats that people asked for. With that in mind, what formats is it out in?

First and foremost, it is out in paperback and ebook format, available from Amazon in multiple countries, and Barnes & Noble (paperback only, and US only). There are two editions out. This is because the first edition did not meet requirements for wider distribution off of Amazon.

So here are some links if you wish to purchase the paperback and ebook formats:

Lots of you also asked for an audiobook version. So, naturally, I made that happen! The audiobook is currently available on Audible, but will soon be available on Amazon and iTunes. Here is the link to the Audible edition:

So what else?

I recently published another chapbook. No, it’s not a poetry book this time. This is a three part essay on my experiences with neuroqueering, and it is also where I introduce my concept of the Chaotic Self that you may have heard me talk about in livestreams!

The book is called A Treatise on Chaos: Embracing the Chaotic Self and the art of neuroqueering. It is currently available in paperback and ebook, also both on Amazon and Barnes & Noble. Here are the links:

If I can ask one thing of you all, please share the he’ll out of this news! Tell people about my books, write reviews, spread the word! Being self-published was a fun experience, but sadly, I lack marketing resources and I am being drowned out by some of the other wonderful books that are releasing at the moment. I would love to think that people get a chance to hear my message!

I am published in print in a couple of other places. For more information please click here

Neuroqueer theory and the liberation from Self-Interest

Neuroqueer theory liberates Neurodivergent people on many levels. It allows us to explore the topography of the Self with startling attention to detail, and to embody our discovery of the Self in a way that feels authentic to us. This doesn’t always mean in a typically Neurodivergent way, and in fact, one may find themselves breaking conventions of their own communities in their journey to the Chaotic Self and a neuroqueerer lifestyle. Some might falsely assume that neuroqueering means doing what you want, when you want, but this couldn’t be further from the truth. Neuroqueer theory invites us to consider the nature of truth and explore it’s meaning in our own lives.

Hedonism has been a long-running theme in the human zeitgeist. We have incorrectly assumed that happiness comes from the fulfillment of desire. This has been held as truth by many, but the nature of truth is far more complicated than what society has taught us. Truth is, in itself, a human construct. We have developed our understanding of truth through millennia of of scientific and philosophical inquiry. The thing is, truth is not a naturally occurring thing. It is a label invented by humanity that dictates what should or should not happen. Truth in itself is the basis of all normativity. It is built upon a set of “truths”, truth in this context has been used as a tool of oppression. It has taught us to place our own interests before those of society at large.

Neuroqueer theory liberates us from that truth by showing us the socially constructed nature of not just things we hold to be true, but the very concept of truth itself. When we place objective truth to the side, we are left with our own subjective experiences. The solipsistic nature of human experience is that the only truth we can be sure of is that which we experience ourselves. This is how it invites us to build community and culture that emancipates Neurodivergent people from neuronormativity. We start with the knowledge that what we experience can be known to be true. We can then link those experiences up to that of others through our shared embodiment of those experiences.

From this, community grows, and culture arises. Perhaps the greatest failure of society is the insistence that one person’s experience is more true than another. This highlights the importance of abandoning self-interest. If all experience is true, then as humans we have a duty to ensure that the world we are building allows for positive experiences, such as happiness and fulfillment. In this way, we can see that doing what you want, when you want, is not neuroqueering. Neuroqueering asks us to dismantle the socially constructed normative attitudes that are conditioned into us from birth. It charges us to use our own liberation to liberate others.

I will tread the path so that you can find your way.

It asks us not to be leaders, but to clear the obstacles that befall those for whom the privilege of neuroqueering is not yet accessible.

A neuroqueer society is one that recognises the validity of one’s subjective truth. It accepts that my truth may be different to yours because my truth is constructed from different experiences than the ones you have had.

Neuroqueerness is more than a label, it is not an identifier for the unmasked Neurodivergent. Neuroqueerness is the responsibility to free all humans from the chains of normativity. It is the act of subverting objective truth through the understanding of it’s abstract and socially constructed nature. It pushes us to create a post-normal society in which all people can thrive, and find happiness beyond the fulfillment of material desire.

Until all of us are free, none of us are free.

Neuroqueering religion and the liberation of human spirituality

When considering normative violence and the oppression of marginalised people, there are no greater perpetrators than the Christian Church. Allow me to put this in perspective. My mother is a priest, I was raised devoutly Christian, and until my mid-twenties, I had a strong relationship with the Christian idea of God. Sadly, my step away from Christianity was an inevitability. I had never understood their disdain for other cultures, religions, and gender and sexual identities. As a person who had never fit in, the exclusionary doctrine of the church felt very alienating for me.

Christianity is based on the teachings of Jesus Christ, who is platformed as the Son of God in Christianity. Through western, colonial, misappropriation of his teachings, eurocentric cultures have come to view Jesus as a passive, meek, and mild-mannered man. The idea of “love thy neighbour” is displayed as a call for passive acceptance of the world, rather than the fight to liberate all humans from what was, and still is, an oppressive system of normative bias.

Christians don’t like it when you point out that Jesus was a man who flipped tables and casually intervened in public executions.

So how does this fit into neuroqueering?

Neuroqueer theory teaches us that it is possible to subvert normative cultural standards. In the case of Christianity, those standards are passive indifference or overt displays of bigotry. For me, this cannot be allowed.

If I believe in any God, it is a God who created us all equal. Read that again. They created us ALL equal. That is if there was any intentionality in our existence before.

Since all religion is socially constructed, arising from human perception of what they believe to be the word of God, or Gods, this means that there is no invalid form of spirituality. There should be no one-size-fits-all approach to how we practice that spirituality.

Take the bits that work for you. Combine them and shape them. Mould them. If you want to be a Christian who celebrates Samhain and Solstice, go for it. Perhaps you have your own entirely unique spirituality? That’s fine, too. Build a spirituality that works for you without hurting others. Do as ye will, an it harm none. Explore culture and faith. Break free of the constraints of organised religion. Enter a world where humans can express and body their spiritual lives in infinite ways.

This is vital. If we are going to liberate the oppressed from the systemic violence of a normative world, all parts of human culture must be liberated. While any single one of us, while any aspect of our lives, is imprisoned by normativity, none of us are free. Allow your mind to explore itself. Embrace the Chaotic Self, and parlé your spirit into physical form through exploration and expression of your unique mind.

There are infinite variations of the human mind, meaning that there are infinite versions of human spirituality. Any attempt to confine us into a prefabricated spiritual reality is a terrible thing.

Neuroqueer theory and the advent of social DEcontructivism

Neuroqueer theory is the idea that one can subvert normality by expressing and embodying the Self in ways that break free from the constraints of colonial society. It is a liberational practice that is accessible to all. No matter your neurocognitive style, you can subvert the expectations of what it means to be a “normal human”. By engaging in neuroqueering, we subvert the very idea of what is meant by the word “human” and explore the infinite diversity of our species. The first step to this is to recognise the social construction of all identity. We have to recognise that the way we identify ourselves, and our sense of Self, is entirely built upon the interpretation and expectations of others.

This opens up interesting conversations about the scope of social constructivism and objective truth. If all knowledge that builds our identity is socially constructed, how can one be sure of who they are?

In my book A Treatise on Chaos I discuss the Chaotic Self, the ever growing, ever changing sense of identity that we possess. I recognise that through our experiences and ongoing learning, our identity is a moving target. As social knowledge changes, so too does our sense of Self. I am not who I was ten years ago, and I will be someone different in another ten years. This highlights the importance of neuroqueer theory in the philosophical discourse of epistemology.

Neuroqueer theory might be reasonably assumed to tie into social constructivism, but in a more accurate sense it’s social deconstructivism. Neuroqueer theory is the art of deconstructing knowledge and creating new understandings. It liberates us from past notions and inter-generational trauma by considering that humanities primary purpose (if there is such a thing) is to adjust paradigms given new information. To consider it in other words, humanity exists to evolve beyond the constraints of cultural normativity.

This in itself becomes somewhat paradoxical. If neuroqueerness becomes the new normal, is it still neuroqueer?

My suggestion is no. By viewing neuroqueer theory as belonging to the idea of social deconstructivism, it can remain neuroqueer provided that it still pushes people to deconstruct socially acquired ideas of normality. A post-normal society requires us to escape from satisfaction. It encourages us to question information, and approach life through a critical lens. For neuroqueer theory to work we must be critical of all assumed normality. It tells us that there is no liberation until we deconstruct societies marginalisation of all minority groups. Beyond that, we must dismantle the oppression of humanity by those that deem themselves to be the higher power of our perceived social hierarchy.

When one begins to delve into neuroqueer theory, you begin to dismantle all that you have held to be true. This means that social deconstruction is a painful process. Like all growth, it leaves you with an ache. It becomes necessary to embrace your existential pain and sit with it as you explore your own subjective truth. This, perhaps, is what people struggle with the most.

Why is getting diagnosed with autism so difficult?

The Autistic community has written at length about why getting a diagnosis is so hard, especially with regards to those at particular intersections of experience. I myself have spoken about how our diagnostic understanding of autism is based on the Autistic person in distress. Current models used to diagnose simply do not work.

There is a wider issue to consider, though, than race, gender identity, or trauma. We have to consider the individuality of Autistic people.

Humans are never just one thing. We don’t just experience being Autistic. Every single one of us lives at the intersection of multitudes of experiences. Currently, diagnosis of autism is based on a collective understanding of a shared group of observable behaviour. This diagnostic conceptualisation was socially constructed (ironically) by people who rarely share in Autistic culture. This has resulted in very restrictive criteria that boxes out a lot of people.

Due to the intersectional nature of humanity, these criteria will never capture all Autistic people. Allow me to give an example:

I am Autistic, ADHD, and Schizophrenic. This does not mean that I have Autistic, ADHD, and Schizophrenic traits. None of these traits cancel each other out either. A more accurate description would be that I am AuDPhrenic. My experience arises from the interactions of my neurological systems. I don’t have separate parts of my brain for all three diagnoses. I have a human brain, and my observable behaviour has then be put into three categories.

This is why the medicalisation of neurodivergence has been an issue in perpetuity. We try and categorise human experiences despite its propensity to defy expectations. There is no such thing as an objectively neurodivergent brain. Some of us are just wired in a way that stops us from assimilating into normative society. Any categorisation is an abstract concept that is entirely constructed by humanity.

We can see the irony of diagnosis in neuroqueer theory. Anyone can queer their embodiment. It is not restricted to the Neurodivergent. Neurotypical people could, in theory, neuroqueer to the point that their observable behaviour is not neurotypical anymore.

So what does all this mean for diagnosis?

It means that we need to move away from one-size-fits-all approached to diagnosis. We need to move away from diagnosis altogether. In a post-normal society, we need to allow people to use the words that best describe their own sense of identity. As I talk about in A Treatise on Chaos, identity is a knowing target. The nature of the Chaotic Self is that we grow and change, and our identity is constantly shifting and changing.

We need to allow people to use the words that best describe their identity. Locking a person’s identity behind a diagnosis and then requiring them to receive that diagnosis is a paradox and a betrayal of the neurodiversity movement itself.

Neuroqueering and the Autistic expression of pain

Neuroqueering is a liberational practice. It allows the person to express themselves authentically. But what if authentic expression of Self could cost you your life? What if the people observing you are basing their judgements on a majority group that does not express themselves in the same way that you do?

This is why we need to talk about Autistic people and pain. When we express pain, both emotional and physical, we often embody thar experience differently to the neuromajority. Autistic people have a complicated relationship with pain, and for the sake of simplicity, I would like to consider physical pain.

In hospitals around the world, pain is often recorded using numerical and visual scales. These rely on a person being able to articulate the way they are feeling on a numerical scale and be witnessed to display pain visually in a way that marries up to that figure. One might think it’s a simple system, but if you are Autistic it presents a significant challenge.

Autistic people often experience alexithymia. We struggle to put internal sensations into words. We often can’t articulate what we’re feeling to ourselves, let alone a doctor on a numerical scale. At the same time as this, we often do not express pain in the same way as those of a predominant neurotype.

How many of us find paper cuts unbearable while walking around daily experiencing delirium inducing chronic pain? An example from my own life is the 10 hours I spent walking around with a collapsed lung. I was in agony, but I didn’t respond “typically” to that pain, nor could I articulate its severity in a way that made sense to others.

Enter in the era of the neuroqueer. We are witnessing the birth of a post-normal society. This is a world where Autistic and otherwise Neurodivergent people feel more and more like they can embody their experience in a way that means something to them, and not for the benefit of others. This means that modern medicine needs to also evolve.

Unless healthcare professionals familiarise themselves with the Autistic expression of pain, many of us will be failed (or even killed) by a lack of clinical competency. That is what it is. There is no clinical competency that should not, or does not include an understanding or minority groups experiences of pain.

Neuroqueering is a wonderful thing, but it really does shine a light on the failings that befall Autistic people.

What purpose does the concept of mental “illness” serve?

As a Schizophrenic person, I see many talk about me as being mentally “ill” and in need of medicine. I do take medication, but for me, medication usage is similar to what one might see within ADHD communities. Medicine is a tool, not a treatment. It allows me to function in environments that are not designed to be accessible to me or my needs. It allows me to live my life without the constant experience of distress, one that I experience without medication because the world is not designed for me.

All suffering is valid, and all neurodivergence can result in suffering. Not because we are ill, but because the world is a traumatic place to live. Neurodivergent people have to face the oppression of all that is different on a daily basis.

“Illness” as a concept within psychological wellbeing a distress is a convenience. It allows professionals to tell us our suffering is unavoidable. If we die by suicide, then we are collateral damage. Victims of a pathology ravaging human kind. If we are “ill” then professionals and leaders do not have to acknowledge their role in a system, causing us distress.

This is what we are actually experiencing. Distress. When we can move forward from pathology models and start to consider that what is happening is a very human experience, we can start to point the blame where it belongs. A world that is violent and terrifying for a huge portion of the population. It is not on us to recover from a mysterious, unquantifiable entity of illness. The world needs to change.

We need to recognise that distress is a human experience, and no two humans have the same experience. Just because my distress looks like the loss of our shared reality does not mean that I am ill. Just because I take medicine that eases my distress does not mean I have a disorder. We don’t assume ADHD’ers to be ill for taking medication. Why do we do it to other forms of medication-assisted neurodivergence?

This ties us up in ideas around med-shaming and toxic positivity. One of the reasons people feel shamed of their meds is because, to them, it feels like an admission of guilt. They weren’t strong enough to survive without becoming ill. It’s not fair to let people feel that way. It’s also unfair to go the other direction and tell people to manage their distress without tools such as medicine. It’s possible to be neurodivergent (and not ill) and still need medication for day to day life.

Neurodivergence is aggressively neutral. It has positives and negatives, and it also has experiences that are not able to be compartmentalised. Truthfully, neurodivergent experience is human experience. The fact that we have to section off different experiences and diagnose them as “illness” or “disorder” fundamentally undermines the neurodiversity paradigm.

Mental “illness” is a deeply flawed concept, and until we fix this, we will not be able to reduce human distress.

The privilege of being neuroqueer

I have, for some time now, discussed neuroqueer theory (as conceptualised by Nick Walker and her colleagues), adding my own takes to the emerging liberatory thoughts of a blossoming post-normal era. I consider myself neuroqueer. Not only because of the relationship between my queerness and my neurodivergence, but also because of the relationship between my Self and normative society.

In my book A Treatise on Chaos, I discuss what I have conceptualised as “the Chaotic Self”. Rooted in the idea that all things tend towards chaos, ever changing, unable to unexperience the events that form our sense of Self. I consider how I have neuroqueered my way to this understanding of myself. What I don’t discuss in that book (although I do discuss in The New Normal) is that I was only able to gain this understanding of who I am through privilege.

Privilege doesn’t necessarily refer to the presence of a benefit. More specifically, it is the lack of obstacles and barriers. I suspect this is why so many people struggle to see their own privilege. Much like the Dunning-Kruger effect, you don’t know what you don’t know. You don’t realise the advantage of a clear path through life if you have never had to take stock of obstacles.

I have queered my neurology in a number of ways. One of those ways was the use of mind-altering drugs. I have no doubt that my privilege is what allowed me to do this with no legal repercussions. I also did not have to deal with abusive family and had a safe home away from those who would exploit my journey of Self discovery. I had fewer obstacles to my journey of understanding and growth than those with less privilege.

Neuroqueering requires an element of authenticity in one’s embodiment of Self. It’s necessary to manifest your truth through action, but what if doing so could place you in danger? For BIPOC or other marginalised groups, authenticity can be life-threatening. Authentic embodiment of a marginalised identity is often criminalised or pathologised. Both can land you in prisons or institutions, in some places, it can be met with violence.

Those of us proudly flying the neuroqueer banner need to realise something important. Neuroqueerness is not an individual endeavour. It requires societal evolution. To be neuroqueer requires us to use our authentic embodiment of Self to drive a change that makes a post-normal society safe for all of us. Neuroqueerness that is only accesible to the few is not true neuroqueerness. To be neuroqueer is to fight for the liberation of all humans.

As we move toward a world where normative violence is unacceptable, we need to be prepared for the pushback. Those who benefit from normativity and oppression will not support the redistribution of power. For those with less privilege, this fight could be deadly. As we liberate ourselves, we must make sure to liberate those for whom the barriers to freedom are greater.

I am neuroqueer, and I will fight for your eight to be neuroqueer too.

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