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Spectrum 10k is still not acceptable, here are three reasons why

It is perhaps fitting that Spectrum 10k has reappeared during the dark months of the year. Much like the cryptids of antiquity, it inspires fear in our community, and obscures itself from the sight of all who attempt to quantify it’s nature.

There are no “versions” of the truth. Truth is a singular point, constructed from a collective of subjective experiences. So when the collective experience of the Autistic community tells you that S10k is the wolf among the lambs, we beg you to take heed.

There are three points I want you to consider before handing your DNA over to these malefactors:

1. There is no acceptable version of this study in it’s current form.

Regardless of how they dress it up, no matter how much they polish this particular turd, this is still the starting point of a eugenics program. They want to find the genetic root of autism, and by doing so, open the door to pre-natal testing. If you don’t realise what this means, please Google the amniocentesis test for down-syndrome, and how it has decimated the right of this minority to exist.

2. They are exploiting Autistic people to conduct the newly required “consultations”.

The people conducting these consultations want Autistic people to rehash our concerns for them, concerns that were so important to them that they didn’t take the time to listen the first time. Not only do they want us to repeat ourselves, I very much doubt this traumatic experience will come with any recompense. They also want us to do this without shouting them down. Perhaps, if they don’t want to be shouted down by Autistics, they should stop running projects that could lead to our eradication.

3. They are using token Autistics to manipulate us into engaging.

The fact that they are employing Autistic people to lead consultations is not an accident. It is a direct attempt to tug on our heart strings, and present an air of acceptability to the project. It is my belief that they hope we will believe that they’ve changed, and that it’s different this time, and that we will be more willing to engage with them.

The truth is that they are still using the same misdirection and subterfuge that they always have. Just because the nice man offers you candy, doesn’t mean you should get into the windowless van.

We as a community need to boycott not just this project, but all projects by those involved in the future. If we can show people that their careers are in jeopardy, they will be less likely to make this attempt in the future.

You may feel my words are hyperbolic in nature, but the Autistic community is my chosen family, and when someone threatens my family, I will use my words as weapons. Autistic people have a right to exist, and this flagrant example of ableism and disdain for our existence will become a significant part of our history.

It’s up to you to decide which side of that history you want to be on.

Spectrum 10k is back, and now they want to exploit you

As you may remember from last year, Spectrum 10k was the project that “definitely wouldn’t be used for eugenics” but had involvement from people with links to (you guessed it) eugenics.

I won’t bore you with the details of this project’s history, it has been detailed on this website Here, Here and Here.

No, what I want to bring attention to is the betrayal we are experiencing at the hands of Autistic people, now involved in the project, who wouldn’t know their own tokenism even if they were walked up to it and introduced.

These Autistic people, paid to run consultations, with an aim to progress this experiment in the silent eradication of an entire cultural minority, want us to speak and tell them why we disagree.

As linked above, we have detailed our concerns, myself and others on the BS10k team poured literal tears into defending the Autistic community. We detailed our concerns, we lost weeks of sleep. It took such a toll on us that we are still engaging in peer support over this more than a year on.

So, when we are asked to detail this (yet again) understand that they are asking us to relive that trauma. Trauma that they are at fault for by being involved with this project. Not only do they ask us to go through this for no recompense, they are also asking as to subject ourselves to tone policing.

They believe that not only should we repeat the concerns they didn’t care enough to take note of, we should also do so without getting angry.

If you want to know why there is such suffering amongst the Autistic population, I point you to the likes of S10k and its partners. A group of aggressors who think nothing of exploiting us to meet their own wish to eradicate us.

We will not stand for it.

Our identities are built from our environment. S10k can no longer be allowed to be a part of our environment. We need to make this project untenable. We must not stop until the careers of all involved are brought to an end.

When I tell you to boycott S10k, I also ask you to boycott all future work by the people involved. Because we have to show them just how much we disagree with their actions.

You came for my community, and as a community, we will bite back. We are not the passive agents you hoped for.

We will not let you divide and conquer.

Queerness and me

Queerness. It’s a word that I hid from for over 30 years, and yet, as I type it, I find myself feeling a deep comfort. I have long known that the space between myself and “typical” society is far greater than the purported six degrees of separation. I have at times considered that gulf to be one of existential orders of magnitude. The concept of “alone in a crowded room” is not alien to me. Nothing much is alien to me, except perhaps (at times) myself.

Being Autistic is a core part of my sense of Self. I understand myself through the lense of Autisticness, I embody my neurology unapologetically. Of course, there is far more to my experience than being Autistic. I am also Schizophrenic. Some might pity me, offering me sympathy for my mental illness. Illness is a word that does not sit right with me.

Schizophrenic, yes. Unwell? If I was unwell, should it not be quantifiable? A value that can be measured by a body that lacks the homeostasis that allows it to function properly.

No, I am neurodivergent. That doesn’t mean I don’t suffer, but I believe we must externalise suffering into the environment. Suffering does not arise in the Self, it is a function of inhabiting a space that was not meant for you.

So where does queerness fit into this?

I have come to understand that there are boundaries between the typical and atypical bodiment of the self. These boundaries are man made structures. Social conventions waiting to be transcended. Much like the way I transcend the convention of neurotypicality, delving into divergent neurology, I find myself openly subverting all expectations placed upon myself.

Queerness, to me, is not about who I love. Who I feel attraction to is such a small part of my queerness. In my universe, queerness is the subversion of a reality that has been imposed upon me. If experiencing psychosis has taught me anything, it’s that reality is not a fixed point. While being Autistic has taught me that society’s truths about what is and isn’t “normal” are closer to the machinations of a propaganda machine than anything objectively true.

No.

I am Queer because I do not belong in normative society. My neurology has made it impossible to assimilate. My queerness manifests from the urgency of an existence that requires me to carve out and defend a space to exist in. The boundary I push is the need be contained. I permit myself to take up space. I permit myself to experience my reality.

In many ways, My queerness or perhaps, my neuroqueerness, has allowed me to bookmark a place in my own story, one in which I can let go of the self-hatred for my bodymind’s tenuous relationship with reality.

It is okay to feel what I feel. It is okay to think what I think. I am no more defined by the intrusive nature of my traumatised thoughts, than I am by the colour of my hair. They are a small part of a wider human structure. It’s okay for me to admit that my sense of Self is constructed from interactions with others. We all build ourselves from the words uttered about us and to us.

Queerness doesn’t feel strange to me. It’s a liberation from the chains of normative violence. It’s freedom to think and feel without the moral judgements imposed by society through me. It is freedom from policing my own existence. It is existential liberation.

(Mis)perceptions of reality: Autism, psychosis, and my quest for objective truth

For as long as I can remember, I have been preoccupied with the difference between truth, and mistruth. Long before my psychosis began, I wanted to know how the things we held to be true could be proven as objectively true; it seemed to me that truth was in the eye of the beholder.

Six months after my 18th birthday, I discovered that my reality was a shifting and changing experience.

The problem with psychosis is that you don’t know it is happening. You literally experience an alternative reality. What this taught me was that things I held to be true were entirely subjective, which brought me to the realisation that everyone’s interpretation of truth was subjective.

Consider the boundary between truth and mistruth. It is abstract, a non-entity. Said boundary is entirely built from the collective experience of humanity, an experience which is in itself subjective.

Where those experiences intersect and agree, we label it objective truth. How then can we construct truth from a mind such as mine? One in which reality is a malleable and fluid thing. My Autistic Self has been preoccupied with this for many years, and truthfully I am still searching for answers.

Perhaps, then, it is reasonable to argue objective truth in terms of Descartes? “I think, therefore I am”. Of course this is made more complicated by the after-the-fact functioning of consciousness; and yet, I have often found myself drawn to a sort of solipsism during times of crisis.

Thus, we are left with the only thing I can hold to be objectively true from moment to moment. That my sense of identity, my experience of Self, at any given moment, is the only thing I can hold to be true. An identity that itself is constructed from interactions with my (mis)perceived reality.

So, when I argue the importance of community-connectedness, I am going beyond minority stress models, and beyond social reciprocity. For me, the communities I interact with, and the individuals that I speak with, are directly constructing my truth.

That is why the Autistic community is so vital to me. They have built the only thing that I know to be true.

Neuronormativity, the pathologisation of Mental health, and the normalising of suffering

In recent years mental health has become more widely talked about, thanks to the popularisation of the “it’s okay not to be okay” trope. On the surface this is a wonderful approach to the normalisation of Mental health issues, but does it have a darker side?

There are currently over 300 “disorders” listed in the DSM 5, the diagnostic manual used by psychiatrists around the world. One could imagine that between them they account for the vast majority of human experience; a concerning thought to say the least.

What benefit does this serve us as a society?

Realistically, it only benefits those who adhere to normative standards.

We’ve been taught that mental health concerns are an illness, that we have a pathology that requires treatment. Despite this, there is no biomedical test that can definitively diagnose any of the numerous entries in the DSM. So perhaps there is something more to the pathologisation of human experience.

Our society is broken, it has fixed rules that apply to fewer and fewer people, while trying harder and harder to assimilate people into it’s normative standards of behaviour. Szasz would argue that this approach serves to provide a sort of social control over us.

So now we live in a society where anyone who doesn’t fit cultural standards of normal is considered “sick” or “ill”.

Thus, we reach a point of starting to understand why “it’s okay not to be okay” might have a darker side to it. Mental health issues (in my opinion) arise from living in an environment that can not fulfill the individuals needs. An environment that consistently traumatises those living in it.

However, we are now normalising human suffering. It’s okay to say “I’m not okay” but we must never normalise human suffering. When we do or say things that uphold the pathology paradigm, we are allowing our oppressive society to continue on its harmful path.

We need to do the work to rebuild society into a brighter place, thar meets the needs of the many, and not just a selected few. We do this by recognising that neurodiversity is about more than Autistic and ADHD experiences.

The change starts with us, and it ends with a brighter future.

It’s never okay to suffer.

Autism “cure” culture and normative violence

TRIGGER WARNING: This article contains detailed discussion of harmful “cures”. It also mentions ABA, MMS, Chelation, and has in depth discussion around normative society and the murder of Autistic people.

For as long as I have been an advocate, many of my fellow Autistics have spoken out against cure culture. From Applied Behavioural Analysis (ABA) to Miracle Mineral Solution (MMS), there are myriad “treatments” that claim to purge the autism from autistic people. I could speak at length about the direct harm that these quack interventions inflict, but there is a deeper level of conversation to be had.

We are engaged, at present, in a culture war. On the one hand, we have Autistic culture which teaches us to be neurologically queer in every sense of the words. Be ourselves, connect with the self and express it in a way that honors our neurocognitice style. On the other hand, is cure culture.

Cure culture teaches us that who we are is broken, deficient, unrelentingly burdensome. Curists would have you believe that our lives are empty, broken, that we are trapped in a living death. Alive but somehow non-existent. The discourse around autism “cures” is dominated by non-autistic people who believe they are performing acts of mercy by pouring bleach solutions down our throats, and chelation drugs into our veins.

All of these things are a form of violence against a minority group that simply wants to live in peace. A minority group that intersects with many other oppressed demographics.

This is why Autistics get angry, this is why our lives revolve around our Autistic identity. Not only do we have to be Autistic in a world that desires normativity, we have to justify why we shouldn’t be tortured and murdered by people that are often (incorrectly) described as “well-meaning”. We constantly have to justify our existence. We are begging to be allowed to live while the world at large seeks to destroy us.

And yes, my Autistic self is defined by that which they seek to remove. Remove the autism, and you remove the person. Autism doesn’t even exist, only the Autistic-self exists. I am Autistic, not a person with a fucking carry-on bag where I store my quirks.

Do you want to know why pretty much every Autistic person you meet is at some level of burnout? It’s because we are dealing with this bullshit every second, of every minute. Every hour, of every day. By their nature, our lives require us to educate people on why we should be allowed to carry on existing. Have you tried to every account while teaching literally everyone you meet why being Autistic is not something to be grieved and/or corrected? It’s exhausting.

This is the culture war that we are fighting. We have no choice but to join the frontlines. We have to raise our voices above those who would speak over us.

After all, isn’t the whole point to leave a better world for our progeny?

The Zeno paradox of autism: Is this the root of the double empathy problem?

This was inspired by the book “Authoring Autism: On Rhetoric and Neurological Queerness” by Remi Yergeau.

The double empathy problem, so named, is the title given to the seeming appearance of deficits in communication in Autistic people. The double empathy problem states that Autistic people do not have a deficit in communication, but instead a different style of communication. Effectively, communication breaks down when attempting to communicate across neurocognitive styles. The different communicative styles do not combine well, and the predominant neurocognitive style oppresses the neurodivergent person by assuming a deficit.

Could this breakdown in communicative style arise from something called Zeno’s paradox?

Zeno’s paradox, more specifically, Zeno’s paradox of plurality, states that if two objects have the same attribute in common then we must assume them to be the same thing. In the same way, we can reverse this and say that if two similar objects have any difference, then we must assume them to be different things. Essentially, there is no such thing as the many, only the singular.

If we apply this to Autism and the double empathy problem, you can start to see where the problem arises. Non-Autistic people observe important differences between themselves and us as Autistic people. They then assume that we must be entirely different from themselves.

If Autistic people are assumed to be entirely different from non-Autistic people, then not only can we not have a commonality in the existence of our own culture, communities, minds, thoughts, feelings, and opinions, but essentially we can’t be people. This, I believe is where communication breaks down. Why we are assumed to have a communication deficit.

This paradox objectifies the Autistic person, and removes their agency. Therefore, why is it important to communicate on our level? Why learn our experiences and opinions? Does one listen to the opinions of a pencil? After all, if Autistics are reduced to an object, not part of the collective humanity due to our differences, then what can we possibly say that will be of importance to the human experience?

If we want to be listened to and heard, we need to escape Zeno’s paradox. We need to demonstrate our humanity. We need to demonstrate our personhood.

Until we succeed at such a cause, we will continue to be second-class citizens.

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