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AuDHD addicts don’t respond to shame the way you want them to: Here is why

I have written before about how How the shame cycle barricades us from recovery in terms of addiction. In particular, here, I think about people who are AuDHD. If you exist at that particular intersection of experience, there is an increased likelihood that you use substances to improve your own wellbeing. Where there is self-medication, there is an increased risk of addiction. Where their is addiction, there are people trying to shame them into quitting.

Autism, ADHD, and shame

Being neurodivergent usually comes with a level of shame. This is due to the fact that society uses neuronormativity to police how we think, feel, act, and emote. It is estimated that ADHD children receive around 20,000 negative or corrective comments by age 10. Let us not forget that if a child is AuDHD, then there is a risk that they have been exposed to harmful interventions such as ABA or perhaps even MMS to try and make them “indistinguishable from their peers”.

When we consider this with respect to AuDHD adults, we are literally creating a factory line that takes children and turns them into adults who believe that who they are is wrong, invalid, a failure, or subhuman. To be AuDHD is to be constantly told why you are not enough. I believe from this you can already see why we may turn to drugs and alcohol to feel better.

Why does shame not stop addiction?

Clockwise arrows move between the words “shamed by people” and “use to cope” around the word “addiction”.

Addiction is insidious. It creeps into your life and slowly dismantles it. Stripping away your sense of identity, your relationships, your economic stability. It slowly takes everything from you until it is ready to take you away from the world. Addiction is not a moral failing, and it certainly is not a choice. No one wakes up one morning and decides to give away their liberty in the pursuit of oblivion.

One of the reasons we seek that oblivion is because the pain we experience is so intense that we would rather feel nothing at all. Shame adds to this pain. It eats away at us, tells us we should hide and obfuscate those parts of us that need to be in the light. If open communication is the key to recovery, then shame is the barricade keeping us from it. For this reason, shame will only ever keep us heading back towards oblivion.

What helps AuDHD people recover from addiction?

As we have discussed. AuDHD people are already driven to conceal themselves from childhood. Driving that further by shaming their drug use only serves to entrench that more deeply. In order to recover, we need to be able to communicate our inner experience openly and honestly. We have to create environments where a more natural embodiment of our internal experience is not something that will be penalised. To consider it another way; we have to let people be themselves.

Before we can be ourselves, we have to know ourselves. This is why community connectedness is so very important. Aside from an overall reduction in minority stress, it allows us to learn about ourselves through shared experience with others. By engaging in natural communication and AuSociality, we learn what it is to be us, and how to improve our wellbeing. When we begin to feel good about ourselves, it becomes easier to tackle addiction.

There is no one-size-fits-all approach to addiction recovery, but I am certain that shaming AuDHD addicts will never achieve what you hope it will. If we want to save lives, we have to begin creating safe and nurturing spaces, not driving people back to the oblivion they already feel they deserve.

CAMHS nearly killed me, and it’s not okay.

I don’t talk about my childhood much. Partly because I don’t want to upset my readers, but also because it is not my story alone to tell. The people who did so much harm to me as a child also caused harm to others that I love immensely. A sad part of my life is that as a result of the harm done to me, I made choices in my life that hurt those people I loved. I don’t blame myself, but I also haven’t quite reach the point where I can release myself from the sense that I need to make reparations.

Something that I think is really important to talk about however, is the way I was failed by professionals who very well could have turned my life around. I am happy with my life now, but I do wonder what it might have looked like had I not been left to drown by a service that was meant to be my saviour. That service was the UK’s Child and Adolescent Mental Health Service (CAMHS).

The worst part isn’t even that they ignored my mother’s pleas to assess me for autism. It’s not the time that they tried to put me on Ritalin after a five minute conversation. It’s the way they were nearly complicit in my surrender to the suffering that I experienced. I’m a suicide survivor, and CAMHS didn’t care.

I came to them, beaten and bruised, I laid before them my trauma, my pain, my isolation, my disdain for every aspect of myself. I told them that I couldn’t cope, that I was scared to wake up each day. I told them things about my past that I can’t bring myself to say publicly, even to this day. I was met with silence. Cold, uncaring silence. They did nothing. They labelled me a school refuser. They still refused to assess me for autism.

Is it any wonder then that I found solace in the steel trap of drugs and alcohol? What can one do in the face of unending suffering than desperately scramble to drown out the noise. The noise was inescapable. The voices in my head would scream at me daily. I was paranoid and distrustful of everyone, even those that I loved dearly. CAMHS allowed my psychological wellbeing to deteriorate to the point that I could no longer cope with existing. I resigned myself to an early grave.

Some might ask why this is relevant, I am a man in his thirties, surely this was a long time ago?

No.

This is still happening. Everyday, thousands upon thousands of families are forced to watch on as CAMHS allow their children to suffer. If you want to know why so many Autistic people die by suicide, start by taking a look at this (dis)service. CAMHS are complicit in an untold number of deaths. Each data point in those statistics represents a story untold. A future unrealised. With each child lost by the negligence of those meant to help them, our future becomes a little bit darker.

I am happy today, but it hurts. It hurts to know that my child and millions like them do not have this service in a good working order should they need it. I want a world that protects my child and seeks to heal wounds and change worlds. It’s the least they can do for our precious children.

My name is David, and I’m a CAMHS survivor.

Please help us change children’s lives by signing this petition.

Rat Park: Addiction misunderstood

Johann Hari did a lot for the popularisation of the rat park experiment. This person’s now infamous Ted Talk flung open the conversation that perhaps, just maybe, addiction was not biological in origin. While this attempt to depathologise human experience was admirable, both sides of this argument miss a vital cornerstone that bridges so many gaps in our understanding of addiction.

Rat park suggested that the reason the rats preferred drug-laden water was because of the lack of a meaningful social environment. While I will argue that this certainly plays a role on the perpetuation of addictive behaviours, there is more to be considered.

There have been various retorts, but in my opinion, we need to discuss one thing in particular. We need to talk about trauma.

It doesn’t matter what kind of privilege you have in this world, trauma can set off a domino effect, leading you down a path towards addiction. I am yet to meet any addict who was not trying to hide from pain. Some might argue that not all addicts are traumatised, but I would respond by saying that we need to ditch the normative ideas of what trauma is.

Anything can be traumatic, trauma is relative to the Self, not the external observer.

So, yes, a lack of a meaningful social environment can play a big role in addiction, but I do not believe that is what pulls people into the grasp of active drug addiction. It is what keeps them feeling as though they have no way out. That in itself is a traumatic experience which leads to increased drug use.

This is why we need to constantly be aware of the structures and people that comprise our environments. These components are what scaffold us into active addiction. We respond to our environment, yes, but the factor from that environment that plays the largest role is trauma, not sociality.

Ben Nelson-Roux and Chris Nota: Two tragic tales of systemic failings

This article was Co-Authored by Tanya Adkin and David Gray-Hammond

Trigger Warning: Death, drug and alcohol use, suicide, systemic failure, mental health crisis, inpatient psychiatric care.

The 13th of September 2022 saw the opening of inquests into the deaths of two teenage boys.

Ben

On the 8th of April 2020, Kate Roux forced her way into the room of an adult hostel where she found Ben Nelson-Roux, her son, dead, having been there all day. This happened despite multi-agency involvement and repeated attempts to seek help for her son. Ben was known to be “high-risk” of child criminal exploitation. He was 16 years old. What “high-risk” actually means, is that he was being exploited criminally, and services knew about it. There was no “risk”, this was actively happening. Consultant Psychologist, David Loveday-Simms described him as having a “chaotic and risk taking lifestyle”, this being part of a long history of victim-blaming. He also stated that Ben had started smoking cannabis at age 12. Where was the support for a psychoactive drug user at such a young age?

Loveday-Simms interviewed Ben shortly before his death, and concluded that “he was not a slave to anyone”. Demonstrating a complete lack of understanding of child exploitation. It is frankly terrifying that a CAMHS consultant psychologist demonstrates so brazenly, a lack of understanding around power-exchange, coercive control, modern day slavery, and child exploitation.

That’s not the worst bit.

Loveday-Simms said “I agreed with Mrs Roux that Bens accommodation posed a significant risk to Ben” upon his final encounter with Ben’s mother, before his tragic death. It appears that Ben had been housed as a known child, vulnerable to exploitation, with a history of drug use, and documented attempts to take his own life, in an unsupported hostel for homeless adults. His mother feared that he would die within weeks if correct support was not put in place.

The consultant psychiatrist told the coroners court that Ben would use cannabis and other drugs heavily, which left him paranoid. The night before he died, Ben’s mother had begged for him to be sectioned under the mental health act.

Ben was Neurodivergent, and according to his mother had been struggling with “ADHD, severe mental health issues, and drug and alcohol abuse for years”.

Chris

On the 7th July 2020, a young man fell to his death from a bridge in Southend-On-Sea. It is reported that following a deterioration in his mental health, due to the death of three relatives, he had turned to cannabis to calm himself. It wasn’t Chris’ first visit to this bridge. Paramedics had previously found him at this same bridge on June 27th 2020.

“Coroner Horstead said to Dr Ball: “On June 29th your colleague said you couldn’t keep him [Chris] safe. Was that a view you agreed with?” Dr Ball replied: “That was a view of the whole team that we couldn’t keep him safe at the time.” The coroner said: “Your colleague said there needs to be a hearing for funding. It was unanimous as a team that you couldn’t keep Chris safe in the community?””

Essex Live, (15/09/2022) Click here for more

Chris was Neurodivergent. It’s reported that Chris’ mother Julia had expressed concerns that she felt they were not meeting the needs of her son. She felt he needed specialist autism services. His mother feared that he would die without the correct support. Specialist services were not made available to him.

Chris was Autistic with a learning disability, a drug user, and had previously been sectioned under the mental health act for psychosis. He was 19 at the time of his death.

Discussion

These two deaths were almost three months apart to the day, and 231 miles in distance. Two neurodivergent teenagers. Two vulnerable people who tragically died.

Stories like these are not news to us. They don’t always result in death, sometimes it results in prison, sometimes in long-term hospitalisation under the mental health act. They all follow a similar thread. I don’t think we would be doing either of these young people justice, or the people we work with, if we didn’t acknowledge how far back the misunderstanding of neurodivergence and systemic failings go. It starts in healthcare with lack of healthcare access and a lack of up-to-date knowledge. Parent and victim blaming plays a big part. Discrimination based on stereotypes surrounding young males with “behavioural issues” also play a significant role.

The mess and the underfunding in the education system. The minefield that are Education, Health, and Care Plans (EHCP’s). Lack of social workers with specialist knowledge in neurodivergence, or indeed ANY professional with specialist knowledge.

This should not have to happen in order for people to realise that the system is broken; but that isn’t even happening, there seems to be no change on the horizon. We have a national problem, loads of Neurodivergent people are suffering unnecessarily. In our experience, services just don’t know how to support neurodivergence. Services aren’t designed or accessible for neurodivergent people.

But what would we know, after all, we are just neurodivergent people.

To read more about issues raised in this article, please see the Creating Autistic Suffering series on this website, the first article of which can be found here.

Addiction advocacy and the inspiration paradox: A reflection at 6 years sober

Today I am 6 years sober from addiction. During those six years I have learnt many lessons, but in this reflection I would like to consider something that has played on my mind for the past three years of my advocacy work.

Inspiration.

While not overtly a bad thing, it is often misused to infantilise and minimise the achievements of disabled people while hiding behind a mask of feigned respect. This phenomenon is known as “inspiration porn”.

A good (hypothetical) example of such a thing would be a video of a disabled person doing something completely mundane, like dancing, but they would be dancing with a non-disabled person. The video would centre the non-disabled as some kind of saviour to the disabled person for doing something as basic as treating them like a human being. The implication of the video, albeit in subtext, would be “Look at the amazing things that disabled people can achieve when an abled person rescues them from their shameful existence”.

It’s dehumanising and wrong.

So, addiction advocacy.

As a recovering addict in the public eye, I do what I do because I want to help others overcome similar challenges to my own, and help reduce their suffering. This does in fact require inspiring people. If it weren’t for the sober addict who showed me kindness during my first stretch on a psychiatric ward, I might not have chosen recovery.

The fact that they had turned their life around, and become someone I wanted to look up to was inspiring, and that isn’t a bad thing.

What would be bad would be if people like myself are allowed to become another source of inspiration porn. It’s a difficult line to walk. I want people to have what I have found, not get off on the tragedies that have formed who I am.

Contrary to popular belief, addicts are people. We are not burdens, we don’t deserve our suffering. Regardless of whether or not we are in recovery, we deserve food, housing, health care, support, and kindness.

This is what I want to inspire in people.

So please, don’t look at me and think it’s a miracle that I recovered. My recovery shouldn’t be the inspiration. I was privileged to have a loving and supportive set of family and friends. I had good key workers (although the services they came from were woefully ill-equipped). I was in a place where I was ready to enter recovery.

What I want to inspire in you is the idea that all addicts deserve recovery. I want to inspire you to challenge the systems that keep people like me trapped in a world of suffering.

I want you to know that those with less privilege than myself need us to get in the trenches and help them fight this war.

If that is what I inspire in people, then I am happy with what I am doing. If, however, you look at me and see a walking miracle, then I have not gone far enough.

The tragedies and traumas of my life should not be celebrated. They should be wielded as weapons to dismantle the masters house, and rebuild it into something where we can all coexist and thrive.

Autism, addiction, and my need for control

I have learned a great deal about myself through self-reflection over the last 5 years of sobriety, but one lesson was considerably difficult to learn.

I like to think of myself as a friendly and generally happy and fun person to be around, but the truth is that I need control. I need control over everything. When things in my life are out of my control, I experience a deep-rooted anxiety and panic that can push me into a self-destructive spiral if left unchecked.

This is what made substance use so attractive to me. My life was chaotic and terrifying thanks to my worsening mental health. Substance use gave me control over my feelings and reactions. As an addict, I quickly learned that when things got too much to handle, I could essentially switch myself off.

Not only did it give me control over my emotions, it gave me control 9ver my identity. In previous articles I have spoken about how I was unhappy with my identity, and it’s just as relevant here. I wanted to be someone or something else. Drugs and alcohol gave me that. I was “Dave the Rave”.

I was the guy that by all definitions of the word, should have been dead.

Of course what I failed to see was that I was not controlling my identity, the substances were in fact controlling me. I was not choosing to be David the Addict. It was inescapable.

The final point to consider was that as my mental health deteriorated, so did my routine. My life was chaos. This was horrific to me as an autistic person, which subsequently caused me to deteriorate further. It was a vicious circle that span in perpetuity. Drugs and alcohol actually gave me some semblance of routine. Yet another insidious way that I fooled myself into thinking I was doing okay.

Even now at 5 years sober, I still struggle with my need for control. I catch myself trying to engineer every aspect and every moment of my life. Meditation helps me sit with my experiences, but truthfully the only thing that stops me from manipulating everyone is knowing that it’s wrong. If it was a socially acceptable thing to do, I would absolutely engineer and manipulate everything about my life.

That’s how much I need control over my life.

Filming addicts in crisis is a form of violence

I remember some years ago when the drug known as “spice” was sweeping through my country. Not only were the tabloids having a field day, and not only were people filming addicts on the street under the influence, I was using it.

It was a relatively common sight in some cities. Individuals helplessly and mindlessly stumbling around in a zombie like fashion, people screaming curses, refusing to see the suffering of those of us who were hooked on the stuff.

But what I really want to focus in on are the people who were filming us. They were the worst kind of people, and sadly, they still exist.

The people holding the cameras often claimed that they were “spreading awareness”. In fact what they did, was post the video to social media, and embark upon discussions of how people like me were scum, how we deserved to die, how our suffering was our own fault.

They weren’t spreading awareness, they were spreading hate. It was an act of violence against a group of people that are already significantly marginalised by society. It was the moral model of addiction running at full tilt.

When a person is suffering in such a way, filming them and posting it to Facebook is perhaps one of the most humiliating things you can do. Unfortunately, humiliation is what these people go for. People speak words and carry out acts of violence against addicts eith great regularity. Often without ever raising a fist.

I hope dearly that none of my followers have ever done such a thing. And if you have, I hope you have come to feel remorse about it. By doing such things, you are actively helping to kill addicts.

If it sounds like I am using strong words, then take heed. This is not a harmless matter. Imagine trying to rebuild your life from addiction while videos of you in the thick of it circulate on social media. The Internet is forever.

If you ever see a person suffering in such a way, please extend compassion. Make sure they are safe, call for any help that may be appropriate. You can also help protect opioid addicts by receiving naloxone training. The dawn of naloxone has saved many, many lives.

Addicts are human beings with emotions, hopes, and dreams. We are often traumatised children. Extend compassion where you can.

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