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World Autism Day 2023: A reflection on the work still to do

The date is April 2nd, 2023. This means another World Autism Day (part of the wider Autism Acceptance Month) has arrived, and as the month progresses, we will, as a community, share in the triumphs and comfort one another in our losses.

This month can be a bitter tasting pill for many, with World Autism Day representing a day that should be ours. Sadly, it is often claimed by those whose agenda does not align with the very Autistic people that they claim to support. Today, and all of April, for that matter, serves to remind me of the Autistic people who have left us. The ones for whom this world was simply too cruel to withstand. I often see positivity that change is slowly happening; the change isn’t fast enough, there are no acceptable losses on the road to liberation. Every Autistic person we lose is a scar on our history, and an indictment of the world we live in.

Yes, perhaps the days of asylums is coming to an end, but what of the countless Autistic people here in the UK who are locked away and abused in psychiatric institutions? Can we truly say that the asylums are gone when one can be placed into carcerative care, simply for being Autistic and in distress?

What of the CAMHS crisis that has been ongoing in perpetuity? Can we really say that Autistic people are liberated while our children are being denied their identities and/or turned away from help for being Autistic? Every single day, Autistic people are fighting to exist. While the nature of our fight might be becoming less overtly life-threatening, we still have to recognise that our dramatically reduced life expectancy lists filicide and suicide as to of the biggest factors.

Yes, the world is changing, but it’s not changing fast enough.

Speak of normativity and structural oppression to the average person, and you will be met with blank stares or even gaslighting. To create a truly inclusive world we have to start from the bottom up. We have to consider the foundations that our world’s power structures are built upon. You don’t destabilise oppressive regimes from the top, you foment revolution amongst the people it rests upon.

If I can ask one thing of Autistic people this World Autism Day, through out Autism Acceptance Month, and moving into the future; be resolute in your commitment to shifting the views of the masses.

While change at government and legislative level is vital, it ultimately will fail if we do not change the hearts and minds of our similarly downtrodden friends, family, colleagues, and loved ones. We have to recognise that we are all sharing in oppression and that we have the collective force to cut free from the chains of normativity. We can, together, create a neurocosmopolitan society. We can lay a new foundation for those that come after us to build upon.

I am Autistic, I am proud, and I refuse to accept the way that things are.

Shifting the paradigm on world autism day

April 2nd.

It’s a day that so many of us dread. For as long as “world autism day” has existed, it is a day where (much like every other day) adherents of the pathology paradigm do their best to drown out the voices of those that proudly display their Autistic selves.

Why are we so loud about our experiences as Autistic people? It’s not because we’re trying to take away access to support services for Autistic children, as a certain type of parent will have you believe. It’s because we want to make sure that Autistic people receive support that is not only accessible, but of good quality.

But is this far enough?

Truthfully, no.

Yes, in the current world, we need access to that support. We live in a world that disables us with it’s oppressive nature. The higher your support needs, the more our world seeks to dehumanise you. Should we not be aiming higher than supporting people in a world that treats us like a phenomenon to be studied and experimented on?

Imagine, for a moment, a world where everyone is treated equally. Imagine a world where no one has privilege over another, and no group is marginalised. Imagine a world where being Autistic is no longer a medical issue that requires diagnosis.

This is the world we should be aiming for.

Sadly, societal neuronormativity makes such a world feel impossible. Even the most neurologically queer of us have been raised and indoctrinated into a type of groupthink that makes the act of queering oneself away from said normativity feel like an extreme sport

For some of us, being true to ourselves means putting our life at risk.

In order to move beyond our current society , we must do more than queer the self. We must dismantle the system in which we live and rebuild it. For the new system to work, terms like “neurotypical” and “neurodivergent” must become irrelevant. We need a societal divergence towards a new normal, one in which normal no longer exists.

For this to work, we need to move away from discussion around “disorders” and “conditions” and towards a world in which identity and culture take centre stage. A world where no one needs supporting because society works for everyone, rather than a select few.

This world autism day, we must step forward with a renewed fervour for not just the destruction of ableism, but the belief that a better world is possible. Let April 2nd 2022 be the day that we choose the neurodiversity paradigm.

Perhaps, this time next year, we can wake up to a society that’s just a little bit more accepting than the one we’re in today.

One day, trauma won’t be the collective experience of our autistic culture.

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