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#ItsOkayToNotBeOkay didn’t go far enough: So what will?

Since the mid to late 2010’s, the hashtag #ItsOkayToNotBeOkay has been circulating the Internet a lot. With it came the normalisation of talking about our mental health concerns and the entry of things like depression and anxiety into the everyday lexicon. The issue, however, is that as a campaign it didn’t go far enough. While open discussion of depression and anxiety can be seen as a positive, we cannot ignore the erasure of things like schizophrenia and personality disorders which still face stigma and the vilified existence that contemporary media give to them.

Is it okay to not be okay?

I have spoken at length about my experiences with schizophrenia and my views on mental health. Some may naively believe that my view of schizophrenia as form of neurodivergence means that I don’t suffer much. This would be false. I suffer deeply. Neurodivergence is neutral, it comes with a variety of experiences, and not all of them are positive. In the case of schizophrenia for myself, there have been times in my life I am lucky to have survived.

#ItsNotOkayToNotBeOkay

We often focus so hard on the trauma that leads to mental health concerns that we miss the very real fact that struggling with our mental health is itself traumatic. We lose jobs, family, loved ones, passions, we hurt ourselves, we lose touch with reality. The truth is, to struggle with our mental health is to enter into an abusive relationship with our own mind. It’s not okay. Even for those of us who don’t experience psychosis, the question still remains as to whether or not their brain is deceiving them. While past campaigns have normalised discussing these experiences, they have done little to push us toward a world where this suffering is reduced or prevented.

A graphic created by Autistic Inclusive Meets

Text reads "It's not okay to not be okay

Trauma and pain are never okay

#ItsNotOkayToNotBeOkay"

The Autistic Inclusive Meets logo is at the bottom of the graphic.

What can we do to support each others mental health?

We have to move beyond just talking about individual experiences. Our mental health problems are being created on a mass scale by an uncaring economy and bigotry. We talk a lot about how Autistic people are prone to trauma and mental health problems. This suffering can be traced directly to the oppression of Autistic people and the intersections of identity they exist upon. In order to effect real change in our collective wellbeing, these are the issues that need yo be talked about and tackled.

So please, talk about the things that would improve your mental health. Call out the systems that have harmed you. Help make it impossible to ignore us by adding your voice to the #ItsNotOkayToNotBeOkay campaign. Whatever content you make will help, and sharing related content such as this will also help. Let’s lift each other up to a place where we can make real change.

AuDHD and the politics of neurodivergent embodiment

When living life as an AuDHD (Autistic and ADHD) person, we often find ourselves falling prey to the propaganda of Western society’s neoliberalism. The enforced belief that one should be self-reliant and contribute to the capitalist machine is one that leads to the victimisation of most, if not all, of us. It’s easy to get caught in tackling the surface level ableism. However, we must dig deeper and fight the roots of our oppression in order to begin building a society we can thrive in.

The politicised existence of AuDHD people

When considering the nature of being AuDHD and/or otherwise neurodivergent, it is necessary to consider that we are not allowed to simply exist. As a marginalised community, most every aspect of our lives is a political matter.

Government welfare schemes decide if you can afford to feed yourself and your family, government health departments decide if you should have equal access to lifesaving treatments, and if so, how much you should pay. If you break the law, the government dictates your experience of the criminal justice system. If you are terminally ill, the government dictates the decisions you can make around the end of your life. When you are AuDHD, much of your autonomy in life is shaped by government legislation.

The weaponisation of our politicised existence

While your life is being dictated by those with no experience of it, we have the proverbial carrot dangled in front of us. Assimilate and be free. To some this might seem like an attractive option. If we were to just give in, less of our life would be dictated. Again, this is a mistruth.

The politics of the pathology paradigm are built upon neuronormativity. That unattainable summit of neurotypical performance that those in power ask us to achieve. Through the political control and oppression of neurodivergent embodiment, we are given the choice to deny ourselves; live inauthentically and be provided for, or be true to ourselves and relinquish our agency over our own lives.

To be neurodivergent in Western society is to accept that you are an afterthought, an anomaly to be corrected. As much as we threaten the status quo, the status quo threatens us. Thus, the spectre of legislative intrusion into our lives becomes a weapon to force us into the neurotypical box.

The paradoxical nature of being AuDHD

Politicised attitudes towards autism and ADHD are paradoxical in nature. The Autistic person should be less rigid and structured, while the ADHD person should stick to a routine. The Autistic person should socialise more naturally while the ADHD person should talk less.

No matter the contradictions we live with as AuDHD people, one thing is clear. Society wants us to silence our neurodivergence. To speak neurodivergently, be it with mouth or body, spoken or written, no matter the medium, society wishes for our silence.

Liberating AuDHD embodiment

One could be forgiven for thinking that to liberate AuDHD and neurodivergent people requires the removal of ableism from government. It’s more complex than that. Neurodivergent people are victims of complex systems of bigotry. Rarely are we only impacted by ableism. We face racism, homophobia and transphobia, ableism, sanism. This is not an exhaustive list.

To liberate AuDHD’ers living in a society built on colonialism and white supremacy, we must form new foundations to our society. We must build a place where all are accepted, rather than the privileged few in our culture whose existence is not seen as a disorder. We must embrace those seen as a pathology of humanity and empower each other to make something better than what we have currently.

It is not a disorder to be human. The world deserves better than that which the privileged few offer us.

Being Autistic doesn’t automatically make you a good person

When I was new to the Autistic community, I was somewhat naive. Compared to the circles I had existed within during active addiction, everyone seemed very supportive and generally decent. Unfortunately, I had a rude awakening. Not all Autistic people have good intentions. We are human, and thus subject to making the mistakes and bad choices that most other humans do also.

One of the primary ways that Autistic people are infantilised is in the assertion of our perpetual innocence. The truth, however, is far from that. We are a community that has been traumatised time and again; subsequently reacting to things through our trauma. Beyond that, we have a fair share of bigots. BIPOC, Queer, and gender diverse communities within Autistic circles know this only too well.

Despite a huge part of our community being multiply marginalised, we are a community where those with privilege still speak over others. Even as a write this, I am aware of my cis-, white privilege. Despite the intersections I exist within, I have a great deal of privilege because of the colour of my skin and gender identity.

It was a great disappointment to me to discover the bigotry within our own community. Having come from a life where I was surrounded by bad people, and in fact could probably have been one of the bad people, I had hoped so desperately that there was a place in this world that was untouched by hate. Sadly, hatred is insidious and seeps into the cracks that are available.

It did teach me the important lesson, though, that Autistic people are not inherently good or bad. It helped to humanise not just other Autistic people, but also me. It showed me the pervasive attitudes towards Autistic people that we are trapped in childhood, incapable of having agency over our lives. So, while I cannot stand the bigotry, there is value in the lesson I have learned.

In order to fight back against hatred within our own community, we first have to acknowledge that it is there. We have to acknowledge that Autistic people are capable of hateful behaviour. We are human beings, and we will not fix our problems without acknowledging they are there.

Bigots keep trying to tell us the meaning of words, I have bad news for them

I have repeatedly seen bigots use the “correct” meaning of words in order to try and invalidate and oppress minority groups. An immediate example is the use of singular “they/them” pronouns. Ignoring the fact that the singular use of these pronouns outdates the use of the word “you“, there is further discussion that needs to be had.

The bigots are going to hate this.

Language, at an essential level, is the use of non-verbal symbols and organised sounds. We have, ad a society, decided that particular shapes, sounds, body movements, facial expressions, and actions mean things. The meaning of these things has arisen from our collective agreement. To put it another way, language is a social construct.

Because language is socially constructed, even if words have prior meanings, we can collectively choose a new meaning for those words. This has happened many times throughout history, and in some cases, we have invented entirely new linguistic conventions where prior ones have not been able to convey what we need them to.

The fun thing about language is that you can repurpose it with very few negative consequences. Don’t like a change? Don’t use it. These changes can have huge positive impacts when made in the right spirit.

Language is the biggest social endeavour in history. It is a work of art, and each of us is the artist. By experimenting with language and altering it, we can create new images that we never thought possible. Language is the social construct that controls all other constructs because without it, we can not convey information. This is why we need to honour the words that describe a person’s identity. They are using language as a tool to dismantle normativity. Each time a person uses the words that feel right to then, and not the words they’ve been told to use, the weaker the chains of normative oppression become.

The people who are so attached to their understanding of words that they can not fathom new uses are not the future of the human race. In order to meet the future, we must first cut loose the chains of the past. Normative thinking has so conditioned the bigots that they react with fear at the suggestion of making even the smallest of changes. Mankind can not survive with such aversion to change, and we need to recognise that growth, like many changes, is not always a matter of personal comfort.

Spectrum 10k researchers have given up on hiding their eugenics agenda

CW: Termination of pregnancies, amniocentesis, pre-natal testing, eugenics

Edit: This is just a focus group at this point, but it is terrifying none-the-less.

Spectrum 10k is being run by a team from the Autism Research Centre (ARC) attached to the University of Cambridge. The scandalous research project has been a source of contention for a couple of years now, with researchers showing their flagrant disregard for the wishes and wellbeing of Autistic people in overt ways. Despite their claims that this project has no ties to eugenics, a leaked communication from ARC has now confirmed their intentions.

Find images below

The above images detail a project that will use amniocentesis to investigate hormone levels during pregnancy and how that relates to the development of autism in infants. This is troubling for a number of reasons.

You have probably heard of amniocentesis if you have had a child. It’s a test that involves taking a sample of amniotic fluid from the womb. Typically, this is used to test for Down Syndrome. If a pregnancy is found to test positive, the mother is offered the opportunity to terminate the pregnancy. Regardless of the complex reasons why someone might choose this, it is still eugenics.

Amniocentesis represents a huge ethical issue in medicine. Not only does it put the viability of a pregnancy at risk, it also provides parents with the opportunity to abort disabled children. It raises questions about quality of life, and right to life. Many people have this test, it is an everyday occurrence. Unfortunately, most people are not active in disability communities and can not conceive of why such practices are harmful and upsetting to our community.

In fact, doctors and midwives can be very pushy about amniocentesis. I have heard stories of mothers being tricked into consenting to the test. It highlights an issue where disabled people are viewed as less-than human and as a drain on resources and parental wellbeing. We ate told it is a kindness to prevent the birth of disabled people because we have been conditioned into believing that disability is a tragedy.

So why is it significant that the ARC is running this study?

It has one logical conclusion. The development of a pre-natal test for autism, that will allow for the termination of Autistic pregnancies. When you consider this alongside the Spectrum 10k project, it really shows just how desperate this research centre are to end the existence of Autistic people.

This sort of research comes from the twisted “ethics” of people who are so unaware of their own privilege that they are unable to conceive of Autistic people’s humanity. These people do not care for Autistic people. They only care about eradicating us. Neuronormativity in society has reached a terminal point, where we are willing to end the lives of people who are unlikely to conform to cultural norms.

If you threaten the status quo, they threaten your right to life.

Simon Baron-Cohen and his team are eugenicists. There isn’t any question about it. The research that has come from them over the years has been harmful (to say the least), but now the future of the Autistic community is in jeopardy. All Autistic people have a right to life, no matter how inconvenient it is for others.

I ask any of you who are approached to join this project to refuse. Tell them why they are harmful. Tell them why we will not stand for this flagrant disregard for the sanctity of Autistic lives.

We owe it to the Autistic people yet to come to make this kind of research unviable. It needs to have career ending ramifications for anyone who tries to end us.

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