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Queerness and me

Queerness. It’s a word that I hid from for over 30 years, and yet, as I type it, I find myself feeling a deep comfort. I have long known that the space between myself and “typical” society is far greater than the purported six degrees of separation. I have at times considered that gulf to be one of existential orders of magnitude. The concept of “alone in a crowded room” is not alien to me. Nothing much is alien to me, except perhaps (at times) myself.

Being Autistic is a core part of my sense of Self. I understand myself through the lense of Autisticness, I embody my neurology unapologetically. Of course, there is far more to my experience than being Autistic. I am also Schizophrenic. Some might pity me, offering me sympathy for my mental illness. Illness is a word that does not sit right with me.

Schizophrenic, yes. Unwell? If I was unwell, should it not be quantifiable? A value that can be measured by a body that lacks the homeostasis that allows it to function properly.

No, I am neurodivergent. That doesn’t mean I don’t suffer, but I believe we must externalise suffering into the environment. Suffering does not arise in the Self, it is a function of inhabiting a space that was not meant for you.

So where does queerness fit into this?

I have come to understand that there are boundaries between the typical and atypical bodiment of the self. These boundaries are man made structures. Social conventions waiting to be transcended. Much like the way I transcend the convention of neurotypicality, delving into divergent neurology, I find myself openly subverting all expectations placed upon myself.

Queerness, to me, is not about who I love. Who I feel attraction to is such a small part of my queerness. In my universe, queerness is the subversion of a reality that has been imposed upon me. If experiencing psychosis has taught me anything, it’s that reality is not a fixed point. While being Autistic has taught me that society’s truths about what is and isn’t “normal” are closer to the machinations of a propaganda machine than anything objectively true.

No.

I am Queer because I do not belong in normative society. My neurology has made it impossible to assimilate. My queerness manifests from the urgency of an existence that requires me to carve out and defend a space to exist in. The boundary I push is the need be contained. I permit myself to take up space. I permit myself to experience my reality.

In many ways, My queerness or perhaps, my neuroqueerness, has allowed me to bookmark a place in my own story, one in which I can let go of the self-hatred for my bodymind’s tenuous relationship with reality.

It is okay to feel what I feel. It is okay to think what I think. I am no more defined by the intrusive nature of my traumatised thoughts, than I am by the colour of my hair. They are a small part of a wider human structure. It’s okay for me to admit that my sense of Self is constructed from interactions with others. We all build ourselves from the words uttered about us and to us.

Queerness doesn’t feel strange to me. It’s a liberation from the chains of normative violence. It’s freedom to think and feel without the moral judgements imposed by society through me. It is freedom from policing my own existence. It is existential liberation.

Neuroqueer: Dismantling our internalised ableism

This article was co-authored by David Gray-Hammond and Katie Munday

Trigger Warning: This article contains references to systemic and structural oppression, multiple marginalisation, and negative wellbeing and identity.

Ableism is prevalent in the wider world, but something that we often don’t consider is the ableist views we hold about ourselves. It is inevitable that after spending our lives surrounded by normative culture, we become conditioned to view ourselves as broken, deficient, or less than. Despite being able to share compassion with others, we still harbour overtly bigoted views towards ourselves.

We internalise the harmful things said to us by our peers and professionals – sometimes even partners and friends. We take them all in and think less of ourselves and we begin to believe that there is something wrong with us.

It is clear that our interactions with other people play a significant role in the development of our sense of Self. Our identity is constructed by interactions with people in our environment, as noted in the golden equation from Luke Beardon:

Autism + Environment = Outcome

When Autistic people are in an environment that constantly belittles and mistreats us for our Autistic embodiment, the materials that we can access to construct ourselves are often self-deprecating.

How does one dismantle a lifetime of criticism and negative views arising from those experiences? First we have to understand the impact that said criticism has had on our psychological wellbeing. We have to recognise the neutrality of human thought, we have to learn that not all thoughts we have are reflective of who we are. It is possible to have negative thoughts without judging them as an indictment on our character. Once we begin to do this we are able to replace the criticisms with authenticity; a refusal to be ashamed of our embodiment. Perhaps, then, this is where neuroqueering comes into play.

It’s important to note the privilege at play when people are safe to queer their neurology. Authentic embodiment of Autistic experience can cost people their lives and their freedom in the wrong environment. Whether we care to admit it or not, not all Autistics are born equal in this society. Many Autistic people are multiply marginalised, and experience more than “just” disability discrimination.

One might ask whether or not neuroqueering is a physical act, or something that can be achieved in the mind. Many of us are at peace with ourselves whilst not openly confessing our Autistic experience. This reflects more on the environments that we inhabit than how we feel about ourselves. We can be proudly Autistic whilst understanding that not all environments are safe to authentically embody those experiences.

We also have to consider the role that the pathology paradigm plays in the existence of neuroqueering. The pathologisation and medicalisation of Autistic experience is the driving force behind most (if not all) of the ableism that we experience day-to-day. The idea that people who do not fit cultural standards of “normal” are broken, has not only created the mistreatment we experience; it also necessitated the existence of a counter-culture- neuroqueering.

How does neuroqueering change our perception of ourselves?

Neuroqueering can involve leaning into our weirdness, regardless of other’s opinions. It can also be radical self-acceptance and showing love to the parts of our Self that others have mistreated and abused. Not only does this allow us to reclaim the narrative surrounding our existence, it also gives us permission to take up the space that we have been conditioned to believe we are not entitled to.

Neuroqueer theory teaches us that assimilation denies us access to ourselves, and thus, denies access to the communities (or environments) that will help us meet our need for connection. Only by being our authentic selves can we find similar others and share in reciprocal validation. Neuroqueering dismantles internalised ableism, and the oppressive structures that have been built in our minds by others. It is a practice which champions diversity whilst appreciating that many of us still need support.

Neuroqueering politicises the nature of disability, centering us as the individuals in control of our own lives. Control that many of us are denied for being authentically Autistic. It allows us to appreciate the aforementioned neutrality of our existence through the lens of pride, and the refusal to be ashamed. It recognises that reduced wellbeing is the result of systemic oppression, and a chronic lack of access.

Positive self-identity and Autistic mental health

If there is one recurring theme I come across time and again in my work, it’s that reduced psychological wellbeing in Autistic people is inherently linked to our sense of identity. As Autistic people, we consistently treated poorly by wider society, and we internalise the attitudes that are projected onto us. These internalised negative attitudes, in turn, drive many of the experiences we have that are labelled as “mental illness”.

Of course, I must admit that I have a complicated relationship with the concept of psychiatric malady. I have for some time now advocated for the depathologisation of mental health and recognition of such experiences as the neurodivergence that it is. To read more about that, click here and here.

I am not just Autistic (I’m not even just AuDHD for that matter). I am also psychotic. Not always actively, but due to the nature of my neurology and psychology, certain triggers can result in me losing touch with reality. It can be difficult to ascertain the difference between truth and delusion. This in itself can affect my sense of identity.

Thus, it has been necessary to take time, and use my privilege of good insight, to deconstruct my delusional thoughts and consider their origins. On the journey to understanding the origin and nature of my delusions, however, I have stumbled upon some truths that may be somewhat universal in the world of Autistic Wellbeing.

I know of very few (if any) Autistic people who do not have what a psychiatrist might deem “mental illness”. This is not because there is something fundentally wrong with them. They are not broken. They do not need to necessarily change anything about them. In fact, it is my fundamental belief that labelling us as “disordered” (in the psychiatric sense of the word) incorrectly centres the problem on the individual, when instead we need to consider the environment that the person exists in.

Autism + Environment = Outcome

Back to the point; our sense of identity is largely constructed through our interactions with our environment and the people within that environment. If we wish to give an Autistic person the opportunity to have a positive self-identity, we need to give them an environment that is providing positive interactions.

So, when considering Autistic people who struggle with their sense of identity, we have to take the approach of deconstructing the interactions they jave had with their environment. What are the narratives they are being given? Is their communication with people in that environment allowing them to think positively of their authentic Self?

Once we have deconstructed those experiences, it then becomes necessary to construct a positive identity.

The most vital part of this process is access to neurodiversity-affirming communities. Autistic people need other Autistic people who will help them understand themselves outside of deficit-based models, and outside of medical setting that centres the problem in them.

For me, having access to such communities has been the single most important part of recovering my wellbeing. Research such as that by Monique Botha (2020) has shown that significant importance of community connectedness in the reduction of minority actress, and improvements in our wellbeing. Beyond academic models however, we should be taking humanistic approaches that allow people to feel comfortable in who they feel they are, and not what society wants them to be.

Autistic people, sadly, often do not have access to such spaces. One of the issues with being deep in the Autistic community is that we are blind to the fact that a huge number of Autistic people don’t even know we are here. That is why we have to make our voices heard, and be visible (where we are safe) to wider society. We owe it to the Autistic people out there struggling, we owe it to the Autistic people yet to come.

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