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The reality of how cure culture interrupts the neurodiversity movement
Scene from X-Men

Rogue enters and says "Is it true professor, they can cure us?"

Professor X answers "Yes, Rogue. It appears to be true"

Storm intersects "No, Professor. They can't cure us. You wanna know why? Because there's nothing to cure, nothing wrong with you. Or any of us, for that matter".
Scene from X-men

The above scene is quite poinient to the topic of this article. Here we have Rogue, a mutant who kills everything she touches, and Storm, who can control the weather.

One might be forgiven for not necessarily seeing the connection between this and Autistic experience, but it is in fact a very good allegory for the battle between the normative violence of cure culture, and the neuroqueering approach of a lot of the Autistic community. Rogue and storm disagree on the benefits of a cure because they both have different profiles of how they embody their Self and experience the world.

In much the same way, Autistic people who support cure culture are ostracised and spoken poorly of. I’m going to let you in on something, I used to be one of then. I longed for someone to make me “normal”. I was tired of being the outsider. I, of course, was lucky enough to discover the Autistic community. I learned how to co-exist with my particular profile of traits and intersections. I was taught how to make the best of being a marginalised person, and came to see the harmfulness of cure culture.

Not everyone has had the access to the community I have had.

There in lies the crux of the matter. The cult of normality, peddlers of normative oppression, face less scrutiny while our energies are spent fighting amongst ourselves. While hearing the harmful views of those who are yet to dismantle their internalised ableism is difficult, we need to give them the space to learn and grow with us. If we are fighting each other, we are not fighting the system.

This isn’t to say that we should excuse or accept harmful words or behaviour, more a commentary on the idea that everyone is at a different stage on their journey of discovery and growth. Much as we were brought in from the harsh cold of society, we need to create a space where those with less knowledge and self-acceptance are willing to listen to us and grow alongside us.

Cure culture has done so much harm. From the children being fed bleach, to the trauma Autistics experience hearing those stories, to the civil wars in our own communities. We need to find a way of showing that we understand.

This is what we need to understand; all of us have our own unique experience of being Autistic. Much as Rogue and Storm has vastly different experiences of being mutants, not every Autistic person has a profile of traits and intersections that is congruent with our own. Some of us have been so traumatised that we can not come to terms with our Self. We need to help people come to love who they are, even if that person has more negative experiences than we do.

We need to consider how we create a world that truly accommodates diversity, and not just the pretty, idealistic version of diversity that sells t-shirts and pays lip service during company diversity campaigns.

Autistic culture and the conservation of neurodiversity

I’ve worn many professional hats over the years. Perhaps it may be surprising to some when they learn that I didn’t spring forth from the womb clad in rainbow flags and infinity symbols. My undergraduate degree was actually completely unrelated to autism (in the literal sense); I studied forensic and archaeological science.

As part of my training in both forensic and archaeological practices, I had to learn how to conduct environmental impact assessments. Right now, you’re probably wondering, “Why the hell is David telling us this?” You will be unsurprised to learn that I’m going to relate this to Autistic culture.

You can’t consider an environment and its health without first considering the biodiversity that exists within that environment. Neurodiversity can, from an ecological perspective, be considered a form of biodiversity.

The world can be considered an environment consisting of a multitude of cultures and sub-cultures. In this context, we can consider a sub-culture to be a group within an existing culture that shares similarities with that larger overall culture but contains variations, or perhaps deviations, from the perceived normative standards. I would then like to position Autistic culture in an ecological class of sub-culture.

We share many similarities with the wider cultures within the environment. Thanks to the intersectionality of our community, we exist within multiple larger cultures. We do, however, have specific language and a sociality of our own. So, within the broad context of various human cultures autism exists as its own diverse nook.

Why is this important?

The ecology of an environment is a complex machination. Each seemingly insignificant aspect creates the balance required for each living part of that environment to co-exist with each other. Removal of even the smallest part of an environment can create a cascading effect that leads to the failure of a given ecosystem. With respect to cultures and sub-cultures, they are a necessary part of human ecology.

As a species that evolved to be interdependent, neurological diversity allows for the development of the means of not just co-existence with our fellow humans but also the survival of our species. This, then, is why Autistic people find themselves so concerned with cure culture and eugenics. The ramifications of the erasure of Autistic sub-culture are far-reaching, beyond the scope of our mere elimination from the gene pool. It is possible that our erasure could threaten the ecological balance of the human environment.

Neurodiversity has a farther reach than merely our right to exist as neurodivergent people. It considers our need to exist. Autistic people are not just an aberration. We are not a deviation from objective normality. We are a necessary part of human cognition. Human existence, like the existence of any species, is predicated on its diversity. Reduction of biodiversity can and will ultimately lead to our failure to thrive.

So, with the consideration that we are necessary for the existence of the human race. Perhaps it is time to stop making us “indistinguishable from our peers.” It’s not just Autistic people who are being harmed by attempts to reduce us, it’s humanity itself.

This one’s for you Spectrum 10k

I am angry. I am beyond angry.

I am angry, tired, sad, stressed, and quite frankly, sickened to my core.

Since S10k was announced, I have watched as their blithe request for our DNA has traumatised a community that I love beyond measure.

My friends and colleagues have poured their heart into fighting your (not so covert) eugenics program. I have shared in their triumph, I have shared in their sadness.

I have shared in their horror.

You, S10k, have traumatised an entire minority group. You have taken our emotions, and laid them bare for the vultures.

Enough is enough. Your blatant attempt to pacify us with generic platitudes and promises of doing better are not enough.

We will not stop, we will not back down.

This fight has taken touch from us, but we continue to fight so that a future generation of Autistics may exist.

We fight so that future generations don’t have to.

I refuse to stand by while people I care about suffer at your hands. Your team, S10k, are a constant threat to our wellbeing.

We will interrupt your attempts to erase us.

We are proudly Autistic, not diseased, not damaged. We are the answer to the question “what’s the difference?” We are a beautiful minority.

We are not your play things.

Autism, disability, accommodations, and the status quo

Let me start this piece with a massive shout out to Lyric Holmans (Neurodivergent Rebel). Their recent livestream with Aucademy provided a huge deal of inspiration for me to write this, and I can’t go ahead without giving credit where credit is due.

Autism. Is it a disability, or not? That question will have different answers depending on who you ask. The prevailing opinion is that, yes, it is a disability, but under the social model of disability. To define that in a nutshell, autism is a disability because society is not designed for autistic people.

So, why make accommodations?

By adapting the environment to be more comfortable for autistic people, autistic people feel less disabled. Our world is full of sensory bombardment, requirements for neurotypical time management skills, and things that need our attention. All of these things can be distressing to autistic people, and it is when an autistic person is distressed that they are at their most disabled.

But Lyric also illustrated a flip side to this. When we make the environment more comfortable for neurodivergent people, we generally make it more comfortable for everyone. When people in charge respond with “But everyone wants that!”, that’s the point. Make the environment comfortable for EVERYONE. No one group should get special treatment, neurotypical or neurodivergent.

This also feeds into “cure” culture. I am yet to see a “cure” or behavioural intervention that doesn’t increase an autistic person’s distress. However, making accommodations, in general, reduces distress. Lyric Spoke of square pegs being forced into round holes, why not adapt the hole to fit any shape of peg?

It is the status quo in society that makes autism a disability. That’s literally what the social model tells us. What we need is to rethink society to be inclusive of everyone, not just to have special designated spaces where autistic and otherwise neurodivergent individuals can feel comfortable. This applies to Autistics of any age.

Until we liberate society from its neuronormative approach to inclusion, many autistic people will continue to be disabled. It’s on all of us to create a world where anyone, regardless of disability, can enjoy a society free of ableism and truly inclusive of all.

Accepting Autistics and other radical notions

It’s April, so you know it’s about to get real bloody frustrating trying to be heard over the like of Autism Speaks and other problematic groups claiming to represent “people with autism”.

When it comes to the notorious Autism Speaks there is one thing in particular that we should facing up to. Cure culture.

Cure culture is the ultimate way to show autistic people that you do not accept them for who they are. It starts with better known interventions, such as ABA, and spreads all the way to dangerous quack cures such as Miracle Mineral Solution/Chlorine Dioxide abuse.

Why does society want to cure us? Because it values the status quo over the beauty of human diversity. Unless your quirkiness somehow makes you economically valuable, the world seeks to stamp it out. It’s the ultimate way that capitalistic society harms autistic people. Some people will literally murder autistic people rather than embrace our neurodiversity.

Let me lay it out for you. There is no cure for autism. Taking autism out of the person is like taking the engine out of a car. The car no longer functions as a car. Being autistic is our physical wiring, without it, we would not be who we are.

This is what upsets me so much when I see parents and carers seeking to “cure” their autistic children and loved ones. Yes, we face daily struggles, but how much do you have to resent your child in order to want to change them into a completely different person?

That’s what it comes down to. Resentment. The world resents us for existing. It resents us because we demand equal rights, and the world has to put in work to meet those demands. The old rules of “more rights for me, does not mean less for you” has never rung more true.

If I could stamp out one thing this April, it would be cure culture.

This April, please listen to and amplify #ActuallyAutistic voices. Be an ally to the autistic community.

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