CAMHS & Parent Blame: The impact on the Autistic family
I have written extensively on the impact of Child and Adolescent Mental Health Services (CAMHS) failures on Autistic children and young people. I would be doing a disservice however if I did not talk about the wider reaching impact for the whole family unit. When our children suffer, we suffer. The injustice of services failing to uphold rights of our children can have a detrimental effect on our own wellbeing. However, it can be worse than simply being told “no”. In some cases (more than people care to admit) we face being blamed for our children’s suffering. This has become an entrenched issue in the UK and wider western society, and if left unaddressed it threatens to cause intense harm to Autistic people and their families.
Parent carer blame existed long before CAMHS
Parent carer blame has been an issue for most of the past century. Most famously it can be seen (with regards to autism) in the work of Bruno Bettleheim through the 1950’s and 1960’s with his concept of the “refrigerator mother”. Bettleheim posited that autism was caused by emotionally distant mothers with a detached parenting style. He further popularised this concept with his book The Empty Fortress which was published in 1967. Over the years such parent blame has shifted and changed as knowledge has grown, but it usually focused on mothers, and always engaged in developmentalism; by which it is suggested that there is a “typical” rate of development that all should be measured by. It is also suggested that development is located in the parental relationship (again sounding reminiscent of Bettleheims “refrigerator mother”). The words may have changed over the years, the effect remains the same.
The effect of neoliberalism on parenting
Neoliberalism is based in the idea that individuals should be self-reliant while contributing to wider society. This obviously has ramifications for the capitalist economic system that prioritises productivity over personal wellbeing. Neoliberalism suggests that while supports for our welfare may exist at the state level, individuals should be frugal in their use of them. It is the basis of exclusionary gate-keeping policies, and contributes heavily to parent carer blame. In a world that asks you to rely on yourself, asking for help is seen as a failure.
Understanding parent carer blame in professional services
Parent carer blame has become somewhat of an institutional practice (Clements & Aiello, 2021). It is centered in the belief that development is placed within the domain of parenting. It is also upheld by the neoliberal approach to parenting (Tabatabai, 2020). In this context, it involves the practice of denying supports for disabled young people and then criticising the parents or carers for any negative outcome. This is particularly concerning as it can lead to both implicit and explicit accusations of Fabricated or Induced Illness (FII) (Hollingworth et al, 2023). In short, parent carer blame has become a means of denying support and vilifying parents who oppose services failing to meet legal requirements.
How does CAMHS engage in parent carer blame?
Research suggests that strong parent-professional alliance is a predictor of better outcomes from therapeutic approaches (Kazdin & Blase, 2011). Despite this, CAMHS are well known for breaking the trust between parent’s and professionals by placing blame on parents for their child’s mental health concerns. This starts with smaller things such as referrals to parenting courses, and extends into safeguarding referrals and FII accusations. In particular, Jackson et al (2020) found that parents were made to wait for long periods of time for support. This feeds into parent carer blame where services are denied for long periods, and then parents are held responsible for the negative outcome.
What is the impact of CAMHS parent blame on parental mental health?
Jackson et al (2020) found a wide range of impacts on the mental health of mothers. While the study looked at mothers specifically, I believe it’s findings are applicable to all in a parental position. The study looked at accessing mental health services for their children, but is indicative of the parent carer blame that is rife in UK institution. Two of the primary outcomes were feeling alone and as though they were responsible for their child’s struggles. As you can imagine, this is not conducive to healthy parenting due to the impact on ones confidence and self-esteem.
The study also mentions the vicarious traumatisation of parents through fear of losing a child to suicide. Having a suicidal child is possibly one of the most terrifying experiences that a parent can experience, and yet services in the UK are failing to act on this in a timely manner. They go on to mention the breakdown in parent-professional relations with many parents feeling “rejected”. If we can not trust a service, how are we supposed to safely engage with them?
What does this mean for Autistic parents trying to engage CAMHS?
Autistic people live in a world of constant invalidation and rejection. Many of us have experienced traumatisation via poor professional attitudes from a young age. Parent carer blame then represents a thematic resurgence in the same attitudes and associated feelings that have been thrown at Autistic parents since childhood. When we are trying to integrate and create equality for disabled people, parent carer blame is the antithesis of support for this. In order to have Autistic people feel safe in this world, it’s not enough to simply provide mental health support, we need the whole family unit to feel safe to come forward, without fear of being held responsible for actions outside of their control.
References
Clements, L., & Aiello, A. L. (2021). Institutionalising parent carer blame. The Experiences of Families with Disabled Children in Their Interactions with English Local Authority Children’s Services Departments. Cerebra. University of Leeds.
Hollingworth, D., Ferguson, L., Schaub, J., & Kempson-Byrne, S. (2023). Autism and Parental Blame: A Systematic Literature Review.
Jackson, L., Keville, S., & Ludlow, A. K. (2020). Mothers’ experiences of accessing mental health care for their child with an autism spectrum disorder. Journal of Child and Family Studies, 29, 534-545.
Kazdin, A. E., & Blase, S. L. (2011). Interventions and models of their delivery to reduce the burden of mental illness: Reply to commentaries. Perspectives on Psychological Science, 6(5), 507-510.
Tabatabai, A. (2020). Mother of a person: neoliberalism and narratives of parenting children with disabilities. Disability & Society, 35(1), 111-131.
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