Search for:
Mental health and the neurodiversity paradigm

When considering the landscape of mental health, we also have to consider the normalisation of stigma and the dehumanisation of those who are struggling.

Since the advent of psychiatric medicine, mental health concerns have been described in pathological language. What if we used the language of the neurodiversity paradigm? How would it impact the wellbeing of those with lived experience if we recognised “mental illness” as a form of neurodiversity on a global level?

In my own personal experience, recognising my voice-hearing as neurodivergence has helped mitigate some of my distress. Knowing that my brain is different, rather than broken removes the pressure to fix myself, and instead has encouraged me to engage with talking therapies that are teaching me to co-exist with my personal experiences.

Don’t misunderstand me, there are still plenty of times when I feel broken. Such is the episodic nature of my mental health.

Reframing our mental health experiences as natural variation of minds, rather than sub-human errors in a computer may help many people by removing the self-blame that so many of us in the mental health community experience.

Rather than “you are broken and need fixing” we can consider the much more nuanced approach that there are infinite variations of the human mind, living in a world designed for one predominant style of brain. It seems natural to me that such a world would be incompatible with many people, and as such we experience suffering.

No longer do we take medicine to fix a broken mind, but instead to support our wellbeing in a world that causes our suffering.

Of course, we should mention access to diagnosis. Many of us miss out on our part in the neurodivergent community because our diagnosis is wrong or incorrect. While the general attitude in neurodivergent communities is that diagnosis is a privilege and not a requirement, we need to push to make sure that people acquire appropriate diagnosis in a timely manner. We need to make sure that it is an accessible option for all.

Eventually, however, I hope, a world will exist where diagnosis is a thing of the past. Where we can live in a neurocosmopolitan society such as that posited by Dr. Nick Walker. A world in which no one group has privilege. A world where we can all co-exist. A world a long way off perhaps, but still a world I will fight for.

Once we start realising that diagnostic criteria for ALL mental health is based on the neurodivergent person in distress, we have to become curious about what these neurodivergent minds would look like in a world that didn’t cause them to suffer. What a beautiful neuroculture we could build. A curious thought to say the least.

Addiction advocacy and the inspiration paradox: A reflection at 6 years sober

Today I am 6 years sober from addiction. During those six years I have learnt many lessons, but in this reflection I would like to consider something that has played on my mind for the past three years of my advocacy work.

Inspiration.

While not overtly a bad thing, it is often misused to infantilise and minimise the achievements of disabled people while hiding behind a mask of feigned respect. This phenomenon is known as “inspiration porn”.

A good (hypothetical) example of such a thing would be a video of a disabled person doing something completely mundane, like dancing, but they would be dancing with a non-disabled person. The video would centre the non-disabled as some kind of saviour to the disabled person for doing something as basic as treating them like a human being. The implication of the video, albeit in subtext, would be “Look at the amazing things that disabled people can achieve when an abled person rescues them from their shameful existence”.

It’s dehumanising and wrong.

So, addiction advocacy.

As a recovering addict in the public eye, I do what I do because I want to help others overcome similar challenges to my own, and help reduce their suffering. This does in fact require inspiring people. If it weren’t for the sober addict who showed me kindness during my first stretch on a psychiatric ward, I might not have chosen recovery.

The fact that they had turned their life around, and become someone I wanted to look up to was inspiring, and that isn’t a bad thing.

What would be bad would be if people like myself are allowed to become another source of inspiration porn. It’s a difficult line to walk. I want people to have what I have found, not get off on the tragedies that have formed who I am.

Contrary to popular belief, addicts are people. We are not burdens, we don’t deserve our suffering. Regardless of whether or not we are in recovery, we deserve food, housing, health care, support, and kindness.

This is what I want to inspire in people.

So please, don’t look at me and think it’s a miracle that I recovered. My recovery shouldn’t be the inspiration. I was privileged to have a loving and supportive set of family and friends. I had good key workers (although the services they came from were woefully ill-equipped). I was in a place where I was ready to enter recovery.

What I want to inspire in you is the idea that all addicts deserve recovery. I want to inspire you to challenge the systems that keep people like me trapped in a world of suffering.

I want you to know that those with less privilege than myself need us to get in the trenches and help them fight this war.

If that is what I inspire in people, then I am happy with what I am doing. If, however, you look at me and see a walking miracle, then I have not gone far enough.

The tragedies and traumas of my life should not be celebrated. They should be wielded as weapons to dismantle the masters house, and rebuild it into something where we can all coexist and thrive.

Apparently Autism needs preventing?

The world is not okay.

We are not okay.

Autistic people are not okay, S10k has served as a stark reminder that we are treated as a burden upon not just the people that we love, but society as a whole.

Autistic people are subject to woefully inaccurate and outdated stereotypes that do a great deal of harm to us as a community. For a long time the Autistic community has pushed back against the idea of a linear spectrum, with the “severely disabled” at one end, and bright young mathematicians at the other end. Despite this we still have the likes of Simon Baron-Cohen espousing the need to preserve the young men who have mathematical skill, should a cure or pre-natal test be developed. This says a lot about his views on Autistic people as a whole. It’s eugenics, funded by a capitalist society that decides the value of our lives based on our financial productivity. Eighty years since Hans Asperger “saved” the useful Autistics, while dispensing the lives of those he deemed unworthy, we are still fighting for the right of all Autistics to exist, regardless of special skills or capitalist worth. In 2021 are we witnessing Simon Baron-Cohen morphing into the Hans Asperger of the 21st century?

The truth is, Autistic people are more than a medically diagnosed group. We are an identity-based minority, with a rich culture. A culture that we are excited to share with the world, even in the face of the worlds abject hatred of all that diverges from the neuromajority.

We are everywhere, we are your doctors, your lawyers, your shopkeepers, your shelf-stackers. We entertain you as artists, actors, directors. We are your friends, family, neighbours. Even if we aren’t yet identified (largely thanks to those inaccurate stereotypes skewing the diagnostic process).

We are human.

We have thoughts, feelings, emotions.

We have deep empathy and compassion. It can be overwhelming. S10k is overwhelming, which is how it felt last week when Spectrum 10k was announced, by non-autistic researchers, led by two non-autistic men who have strong links to organisations abhorred by the Autistic community, and supported and promoted by white men, cure culture, and an all round attitude of being pro-eugenics.

S10k has been peddled by people who are not autistic, don’t understand autistic culture, and don’t even understand the nature of this research. Indeed, nobody understands the nature of this research because of the secretive nature of those in control. The truth has been obfuscated in an attempt to gaslight Autistics into giving their DNA to those with ill intent, or for future use by those who mean us harm.

“There’s no way that we can ever say that a future political leader or a scientist won’t use the research for eugenics.”

Simon Baron-Cohen

Are we really at the point, in 2021, where we have to beg for our right to exist?

Because if that is the case, we are collectively pleading with you to boycott this study.

How can we ignore the fact that Baron-Cohen and Gerschwind have previous ties to Autism Speaks and Aims2Trials. Both of these groups are known to either look for a cure, or fund those who are.

Why are we pleading? The effects of this betrayal by society have taken a huge toll on our collective mental health. In the week since this has launched, the damage that has been done has been immense, imagine what further damage this study could do if left to fulfil it’s aims.

The study claims to be looking into the causes of poor wellbeing in Autistics. They already know what causes it, and it’s not in our DNA. It is, however, quite possible that the thought of our parents having the choice to abort us does cause the poor wellbeing they claim to be so invested in preventing.

Imagine what the Autistic community could do with that money; We could train the whole of the U.K on improving mental wellbeing for Autistics, training on supporting us in a disabling environment.

Are you Autistic? What would you do?

Will you stand by while our DNA is misused by those who seek to destroy us?

Please, do not give your DNA to these people. Do not allow them to destroy the rich culture that we have spent decades cultivating and nurturing.

Sincerely,

The Autistic Community.

This article was a collective effort by the team at Boycott Spectrum 10k and the Autistic community at large.

Please join us Twitter tonight at 7pm BST by following the link below.

@BoycottSpect10k

To read and sign the full statement against S10k, click here.

Verified by MonsterInsights