Search for:
What purpose does the concept of mental “illness” serve?

As a Schizophrenic person, I see many talk about me as being mentally “ill” and in need of medicine. I do take medication, but for me, medication usage is similar to what one might see within ADHD communities. Medicine is a tool, not a treatment. It allows me to function in environments that are not designed to be accessible to me or my needs. It allows me to live my life without the constant experience of distress, one that I experience without medication because the world is not designed for me.

All suffering is valid, and all neurodivergence can result in suffering. Not because we are ill, but because the world is a traumatic place to live. Neurodivergent people have to face the oppression of all that is different on a daily basis.

“Illness” as a concept within psychological wellbeing a distress is a convenience. It allows professionals to tell us our suffering is unavoidable. If we die by suicide, then we are collateral damage. Victims of a pathology ravaging human kind. If we are “ill” then professionals and leaders do not have to acknowledge their role in a system, causing us distress.

This is what we are actually experiencing. Distress. When we can move forward from pathology models and start to consider that what is happening is a very human experience, we can start to point the blame where it belongs. A world that is violent and terrifying for a huge portion of the population. It is not on us to recover from a mysterious, unquantifiable entity of illness. The world needs to change.

We need to recognise that distress is a human experience, and no two humans have the same experience. Just because my distress looks like the loss of our shared reality does not mean that I am ill. Just because I take medicine that eases my distress does not mean I have a disorder. We don’t assume ADHD’ers to be ill for taking medication. Why do we do it to other forms of medication-assisted neurodivergence?

This ties us up in ideas around med-shaming and toxic positivity. One of the reasons people feel shamed of their meds is because, to them, it feels like an admission of guilt. They weren’t strong enough to survive without becoming ill. It’s not fair to let people feel that way. It’s also unfair to go the other direction and tell people to manage their distress without tools such as medicine. It’s possible to be neurodivergent (and not ill) and still need medication for day to day life.

Neurodivergence is aggressively neutral. It has positives and negatives, and it also has experiences that are not able to be compartmentalised. Truthfully, neurodivergent experience is human experience. The fact that we have to section off different experiences and diagnose them as “illness” or “disorder” fundamentally undermines the neurodiversity paradigm.

Mental “illness” is a deeply flawed concept, and until we fix this, we will not be able to reduce human distress.

A Schizophrenic woman was dead three years before being found: Here’s why that happened

This article will be upsetting to read.

Click here to read the news story.

Laura Winham was a Schizophrenic woman. I don’t know much about her, but I can imagine what her life might have looked like. Schizophrenia is a peculiar form of neurodivergence. I know from personal experience that this particular neurology can make you question just about every aspect of reality. It’s possible that (like me) she was exhausted from the daily battle to know what  thoughts could and couldn’t be trusted.

Like any neurodivergence, I don’t see schizophrenia as an illness. What we see as the diagnosable condition is actually the manifestation of distress in a neurodivergent brain. It is isolating and scary. When episodes happen, you will give anything for it to be over.

Laura was a human being with a life, a family, and undoubtedly had a lot to offer the world if supported to move beyond the experience of distress.

I think when many people read this story, they imagine it as an unavoidable tragedy. Perhaps they imagine that the problem was with how long it took people to discover her remains. That is not the issue. The issue here is the failure of Local Authorities and mental health teams to provide the support this person needed to survive her distress.

These services are supposed to draw the line. They are the one’s we turn to in our most vulnerable moments. Yet, for many of us, it seems thar we are little more than a nuisance for them. The advent of crisis-driven interventions and defensive practice have meant that people of all ages and backgrounds are dying at the hands of services that couldn’t do their job if they wanted to. The resources aren’t there. There is very little meaningful intervention that services can provide while the system is being defunded and sold off to private interests.

If people want to know why individuals such as myself and Laura have such drastically reduced life expectancies; consider the ongoing distress we experience and the way that distress is compounded by services that offer little to no meaningful support. Laura was very much on their radar, but as you may have heard- you can’t pour from an empty cup.

Her death was 100% preventable. Schizophrenia and other neurodivergence doesn’t have to be a terminal diagnosis. When given adequate support, and when given access to affirmational environments, we are able to flourish. We can experience the joy of human connection and self-development. Sadly, Laura’s development was cut short by inept professionals and the fallout of a government that cares more about profit than people.

This failure will have unending ripple-effects that will go on and potentiate themselves throughout the lives of those who cared for her. This needn’t have happened. This could have been different.

Do not allow this failure to be swept under the rug. Don’t let her death be in vain. Now is the time for action, now is the time to draw a line in the sand, and protect all neurodivergent people from the dangers of a broken system.

Understanding Autistic mental health in a broader context

We often discuss anxiety and depression amongst the Autistic population. Some such as myself and Autistic and Living the Dream have pushed to get lesser discussed mental health concerns into the zeitgeist, but there is a problem with how it is framed in a more general sense. When most people discuss Autistic mental health, they discuss the individual experiences, I feel it is necessary to look at the bigger picture.

One of the reasons we centre our conversations on individual experiences is because of the medicalisation of acquired neurodivergence. Medical models of psychological wellbeing centre the experience of distress as the defining feature of what is then described as a disordered mind. It teaches is that acquired neurodivergence is the source of our suffering, placing the responsibility on us to adapt to an unchanging environment.

This is where Autistic mental health becomes complicated. In general, Autistic people favour social models of disability and neurodiversity-affirming approaches, and yet we are taught that further neurodivergence is a disorder. It directly conflicts with our understanding of our Self. It partitions off parts of ourselves and teaches us to eliminate them rather than co-exist. What we actually need is to recognise that distress from traditional “Psychiatric conditions” is as much of a reaction to our environment as an Autistic meltdown is.

The environments that exist in our world are inherently traumatic for Autistic people. Trauma alters the way the brain functions, and we are then taught it is our responsibility to recover from that. In truth, the responsibility lies with the environmental factors that cause our distress. You are not suffering because of “illness”. You are suffering because the world is not made with your needs considered. When the world consistently abuses us, crosses our boundaries, and fails to meet our needs, we suffer.

Autistic people need to be allowed to co-exist with themselves. We need a world where the experience of distress doesn’t require us to get better but requires the world to do better. Lack of accessibility and invalidation of people’s lived experiences might well be one of the biggest causes of psychological distress in our society.

Drug-use and harm reduction: what does it look like?

When we consider harm reduction strategies for drug-users, we often think about education on the safer use of drugs. Things such as safer injection practices and “tasting the hit” to reduce accidental overdoses. While things such as safe consumption rooms and needle exchanges can reduce a lot of the surface level harms, there is a wider conversation about the factors leading to drug-use and the fall out from drug-use once it has initiated.

Here are some of the things that, in my opinion, are important factors to consider when trying to reduce the harms from drug-use.

1. Trauma-informed practice

First, we need to stop viewing trauma through a normative lens and realise that trauma can be experienced from just about any source. As I discussed with Tanya Adkin in the Creating Autistic Suffering Series, trauma is a subjective experience.

Once we have shed our misconceptions of what constitutes trauma, we need to recognise the role that traumatic experiences play in the harms associated with drug-use. Anyone supporting people around harm reduction needs to remember that they are more than likely working with traumatised people.

2. Responsible prescribing practices

The pathologisation and subsequent medicalisation of distress has done many people a great deal of harm. For many people, myself included, it has meant trading addiction to illicit drugs for addiction to prescription drugs. In my case, prescription drugs were more dangerous than the illicit ones due to ease of access.

People don’t like to admit it, but doctors often end up being a person’s main supplier of drugs.

3. Move away from current diagnostic models in psychiatry

Distress doesn’t have to be centred as a problem in the person. In fact, I would argue that it’s necessary to externalise it by looking to the environment, and subsequent experiences of people in distress. We need to consider that if we want people to be safer in the use of drugs, we need to think about what in their life has brought them to using them.

For a good example of this, check out the power threat meaning framework.

It is also important to embrace neurodiversity models. It’s not just Autistic people that are Neurodivergent. Neurodivergence can be acquired in a number of ways, or you van be born with it. It is important, though, to recognise that “mental illness” as a concept has not improved outcomes in psychiatry in over 50 years. Recognising Neurodivergent people in distress will take you much further.

4. End prohibition

The war on drugs is a lie. It has not stopped drug use, and neither has abstinence-based education. Making drugs illegal does not stop their use, it empowers clandestine markets to exploit the distress of vulnerable people, for profit, and increases harms through the lack of regulations around purity and age restriction.

This is a non-exhaustive list. We need to have a wider conversation about racism and other bigotry, socioeconomic status, housing, access to healthcare, and myriad other factors. I do not believe I could do this justice in a short blog.

I hope that we can move into a world where we support people rather than criminalise and institutionalise them. I hope that medical professionals can take a moment to acknowledge the harm their profession has done. I hope that we can all assess our own internalised ableism towards drug-use and addiction.

We may not be able to solve this issue over night, but little by little, we can make the waves that will sweep away the old models and make space to replace them with something that works better for every one. The greatest thing we can do is have a little compassion for others who are suffering.

How “mental illness” disempowers the average person

Over the past decade or so, we have seen a surge in the awareness of so-called “mental illness”.

While the concept of telling people you are struggling has served a good purpose, the concept of “illness” has actually disempowered people who have these particular neurodivergences and the people around them.

Human suffering, as it stands, is a heavily medicalised field of study. It has become the realm of doctors and nurses, and this is where we become disempowered. When we experience suffering, we believe that only doctors have the responsibility to remedy that. The average person is made to feel as though they are “out of their depth”.

In fact, the responsibility for reducing human suffering is on all of us. Medication can take the edge off, but to see a true reduction in trauma that litters our society, we all have to do work. Doctors are not responsible for the environments and people we grow up with, and yet we assume they are the answer when we experience suffering as a result of those things.

Society is structured in such a way that we are likely to encounter trauma throughout our lives. It is important to move beyond normative standards of trauma and recognise the subjective nature of this abstraction. What is traumatic for me may not be traumatic for you. It does not make it any less valid.

This is why we need to listen to minorities about minority experiences, ot allows us to root out the traumatic experiences occurring in society, and not just those which we recognise. When we invalidate another person’s experience, we are contributing to the immense suffering that is currently happening in our world.

Perhaps then, it is pertinent for us to take responsibility for the role we each take in the suffering of others and ensure that we are doing good with the limited time we have on earth.

Our psychological well-being is far from being solely the realm of medics. We each play a significant role in other people’s worlds.

Verified by MonsterInsights