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Reclaiming Neurofuturism: Autistic embodiment and the enactment of neurodivergence

When we seek to describe our Autistic and otherwise neurodivergent selves, we tend towards discrete categories and observable definitions of what we mean. However, to be Autistic is more than a diagnostic category; while Autism is a defining part of my experience, I also enact neurodivergence. My embodiment gives definition to what people mean when they use words like Autistic, ADHD, AuDHD, or Schizophrenic.

Performing Autism

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Like any of the diagnostic categories that have been assimilated into my identity, I perform them much in the way a neurotypical performs neurotypicality. Unlike the diagnostic criteria that bestowed these identities on myself, my performance is not containable. Every word that passes my lips, every action that my body makes; my existence gives meaning to the word neurodivergent. We often hear:

“When you’ve met one Autistic person, you’ve met one Autistic person.”

Unknown Author

I, however, would go one step further. Through our embodied relationship to the Self, we become autism. In the same way, I have become ADHD, and I have become Schizophrenia.

Queering the diagnosis

Autism does not exist as a separate entity, it exists as the embodied performance of ourselves. We choose the meaning that our identity has. We don’t have to be the Autistic that everyone else expects; through our performance of Self, We can redefine what people mean when they use words like Autism, Autistic, or neurodivergent.

We are both the writers and the actors in the performance of our neurodivergence. It is our job to deconstruct the politicised Autistic identity and replace it with the embodied and fluid definition that one might only find within the Chaotic Self. To word it another way; if we perform autism, that performance will change and evolve with each interaction with our environment.

Concluding Remarks

This lays a significant responsibility upon us as both individuals and a connected community. If we are redefining the meaning of autism and neurodivergence, it is on us to ensure that its definition is neither exclusionary or repulsive. The meaning of autism is written on our bodies, and we choose the words that write it into being.

We must strive toward a future free of the dichotomous standard of “meets diagnostic criteria” and “does not meet criteria”. Only when we break free of our politicisation and medicalisation can we truly explore the endless possibilities of doing autism.

Yes, being Autistic does define me

Some years ago, I wrote a similar article for Neuroclastic. I thought perhaps now was the time to revisit the topic with several years more experience under my belt. Too many times I have been told not to let my “autism” define me, that I am something other than Autistic.

So, yes, being Autistic is a defining feature of who I am. This isn’t to say it is the only defining feature, but it is a core part of my identity. Of course, it is more than an identity to me. Much like my being ADHD and Schizophrenic, it defines my relationship to the universe surrounding me. I imagine my Autistic brain as a singular point, an event horizon within which all things become Autistic.

When I wake up, I do so Autistically. When I hold my son, I do so Autistically. When I breathe my last breath, I will do so Autistically. Autism is not a separate entity that inhabits me. I do not carry my autism as one might carry a brief case. My autism is the words I write, the thoughts I think. Autism is the way I feel. Autism is the way I love.

I am David, and so is my autism. If I were not Autistic I would not be David.

When others ask me not to be defined by “my autism”, they are asking me to cease existence. I have no existence outside of being Autistic because everything I do, I do as autism. As Autistic people, we are the point at which autism stops being an abstract concept and instead becomes a living, breathing human. My humanity is Autistic, and I will never know of non-Autistic humanity.

I can not tell you what it is like to be Autistic in a way that you can fathom unless you also are Autistic. Autism is all we know. We have never been anything other than Autstic. Even when I queer my neurology and seek a new way to exist, I do so as an Autistic person. My autism is exploration. It is expression of Self that can not, and will not, perform typicality.

So, do not ask me to define myself outside of autism. To do so is to ask me to define myself outside of my existence.

The relationship between queerness and being Autistic

“Queer is a term used by those wanting to reject specific labels of romantic orientation, sexual orientation and/or gender identity. It can also be a way of rejecting the perceived norms of the LGBT community (racism, sizeism, ableism etc). Although some LGBT people view the word as a slur, it was reclaimed in the late 80s by the queer community who have embraced it.”

stonewall.org.uk

I am queer, and I am also Autistic. In fact, it would be more accurate to say that I’m queer and multiply neurodivergent; I am not just Autistic, but also ADHD and Schizophrenic. Some might wrongly assume I should keep my queerness out of discussions of neurodivergence, but the two are inextricably linked.

As an Autistic person, I find myself constantly questioning the status quo. Even before the discovery of my neurodivergence, the concept of normality felt painful and alien to me. I used to believe that normality (perhaps more accurately, normativity) consisted of arbitrary rules, but I realise now they are not arbitrary at all.

Normativity is designed to oppress those who do not comfortably fit into it. For Autistic and otherwise neurodivergent people, we struggle to fit into the system because of our neurology. For queer people, we do not fit into the capitalist fairy tale of binary gender and monogamy within the confines of heterosexuality. This is neuronormativty and heteronormativity respectively.

The relationship between the two lies in my abject rejection of normativity. I have neuroqueered myself into a fluid and radical identity that stands opposed to what colonial society wants me to be. This is more than just “acting Autistic”. I embrace queerness in all aspects of my life, sexuality included.

Queerness in this respect is not solely about who you are or who you sleep with. For me, my queerness is an act of defiance, a refusal to be contained. Being queer leaves me the space to be whomever I wish, to explore avenues that society would rather cordon off from me.

If I were not Autistic, perhaps if my particular mix of neurodivergence were different, I would not have this drive to liberate myself from the cult of normality. We were sold the lie of essentialist identities, and my bodymind is painfully aware of its dishonesty. I am queer because the world does not want me to be queer.

To be contained into fixed and sanctioned identities is to entangle the Self in the chains of normativity. Queerness, then, is the angle grinder cutting through those chains. I am openly queer so that it may be safer for others to be queer. My pride is not egotistical, but a refusal to be ashamed of any part of my being.

I reject normativity in all kinds, including the identity politics of my perceived peer groups. None of this would happen if I were not Autistic.

Neuroqueering education through rhizomatic community networks

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When considering the pervasiveness of neuronormativity, nowhere is it more visible and prevalent than in the education system. Educational institutions place a great deal of pressure on students to engage with behaviour policies, uniform policies, curriculums; more so, they define not only how one should learn, but how one should embody that learning and the ways we think about that learning.

Schools are, for the most part, completely ill-equipped for students who can’t conform to the restrictive ideals placed upon them by a school and institution that functions as a machine, creating apostles of our neoliberalist economy. Far too many children are traumatised and subsequently excluded from their human right to education because of the normatively violent approaches of the education system.

So how might we subvert and redesign education?

I have spoken recently of rhizomes. Vast networks of points that are connected while remaining independent of each other in terms of their survival. Such rhizomatic communities take a post-structural approach to the creation of community and the sharing of knowledge by ditching hierarchical notions of milestones and targets and instead allow us to take an interest-led approach.

Allowing communities to form around mutual interest creates different points within the rhizome. Through exploration and knowledge exchange, intrinsic connections form through the understanding that all knowledge is inherently connected. This is the basis of how one might queer the education system.

By allowing people to engage with interests and learn through that which they are intrinsically motivated to explore, the natural connections between points in the rhizome can be used to expand learning into other areas while maintaining and interest-led approach. Such a world would have no need for institutional education as knowledge creation and sharing would be a community endeavour.

Everyone would be the educator and the learner.

Some may worry about the standard of education that a person can achieve outside of the traditional institutional structure; truthfully, how much of the knowledge you hold now was attained within the walls of a school? Most learning is community based. School systems offer a very limited basis of knowledge that often seems pointless thanks to a lack of context.

Education should not be reliant on normative standards of teaching. We should be empowering each other to share the knowledge that we gain over a lifetime. Such a world would take us away from the self-reliance of our current society while allowing us to retain our individuality. Through a rhizomatic network of learning, we create a multiplicity in our individual existence that can not be achieved within the confines of the institution.

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Reclaiming Neurofuturism: Rhizomatic communities and the Chaotic Self

I have recently begun to explore the idea of the Autistic Rhizome as a futurist ideal of what the Autistic community could look like. In this concept, we explore communities that exist of networks with no single point of origin. They are interlinked but not dependent on one another for their existence.

You can read more about this here and here.

Co-existing with this idea is my concept of The Chaotic Self, which I first discussed in my book A Treatise on Chaos: Embracing the Chaotic Self and the art of neuroqueering. This idea position’s the Self as a fluid entity, constantly changing with each new interaction, making one’s identity as changeable as your hair colour.

What I would like to consider is the interplay between these two concepts.

If we consider the Autistic Rhizome, we are connected to one another either directly or indirectly. We are not independent of each other, but also do not rely on one another for our space in this rhizomatic network. What happens when we queer our neurology and alter our sense of Self?

As the Chaotic Self alters and grows, its relationship with the rest of the rhizome is altered. This affords it a different set of interactions and experiences, which in turn queers the Self further. Due to the interconnected nature of such a rhizomatic network, neuroqueer theory becomes farther reaching than ones own neurology. By queering ourselves, we are queering entire sections of humanity.

One could assume that at a certain degree of separation within the network, our reach is stifled, but as we queer ourselves, the relational change with our immediate environment transfers the process onwards to the rest of our community in somewhat of an u predictable manner.

Perhaps then, the argument could be made that if we want to alter society, we must first alter ourselves. When Walker (2021) tells us to “throw away the masters tools”, we must realise that we are the masters tools. Society has made us complicit in our own imprisonment. To throw away the tools means queering ourselves on a fundamental level. We must become different on an individual level and, in turn, alter the world around us.

As such, to embrace the Chaotic Self requires us to embrace the rhizome. We must recognise that any change to our own embodiment and subsequent relationship with the environment alters more than our inner world, it has knock on effects for the human collective, that itself is an ever-changing, amorphous entity.

Further Reading

Neuroqueer Heresies by Nick Walker

A Treatise on Chaos by David Gray-Hammond

I also recommend becoming familiar with the work of Delueze and Guattari for a broader understanding of some of the motivations behind this post.

Intergenerational trauma and the perpetuation of harm

“Mother is God in the eyes of a child”

William Makepeace Tackery

The above quote, whilst pertinent to this discussion, is only half of the picture. Adults control most aspects of a child’s life, and whether or not we realise it, we do this by being the people they depend upon to survive. I often wonder if those who abused me stopped to realise quite how severely they failed me in constructing a child for whom a feeling of safety was a rarity.

Children, like all of us, are socially constructed. The Self is an amalgam of the relationships and experiences afforded to us by the environment. This proves particularly problematic for children in abusive situations. Extensive and prolonged abuse creates a rocky foundation for Self-actualisation and scaffolding of one’s identity.

Much as the child who grows up seeing nothing but shadows does not realise there is a person who casts them, the child who is consistently and extensively mistreated does not view their abuse as out of the ordinary. This is how trauma passes from generation to generation. The normalisation of inflicted pain allows for it to be passed on.

There is a greater complexity to this matter than simply the way our parents and other family members treat us. Services and professionals who are meant to support us often compound the pain we are experiencing. When one is more concerned with the law than with ethics, you are almost definitely contributing to pain.

So, now we have a world where harm comes from all directions. This harm is so consistent and resilient to change that we do not realise its lack of acceptability. We are constructed into adults who believe that things should remain the same because “we turned out fine”.

We didn’t.

It’s not okay.

Our colonial society has taught us that normative violence is the pinnacle of love, and yet so few of us have actually known what real love feels like. We are hurt people who are hurting people. Not because we are fundamentally bad, but because the inflicting of pain in our world is taught to us as a second language.

We have become masters of our own torture.

It is necessary then to explore ways of moving away from this world of normative suffering. We must queer the expectations of human experience in order to build a new society where abuse of the Other is as unacceptable as any other crime against humanity.

We deserve a world where our fundamental human rights are not trampled daily, and more so, our children deserve the opportunity to construct themselves in love and not the crucible of pain.

Reclaiming Neurofuturism: Decolonising the Autistic community

Community is somewhat of an abstract concept. It is an adjective for a group that has a shared identity. It comes with rules and politics that dictate how one must carry themselves. There is a dichotomy of insider and outsider within communities, often dictated by agreement of the communities politics. Those who don’t conform are ejected.

The Autistic community is not immune to this. Deleuze and Guattari, I imagine, would see the Autistic community as a machine. One enters the community, working their way through it until they achieve the title of advocate. There is a power imbalance between those that advocate and those who choose to remain quiet in the public domain. As advocates, we largely write the rules of our community.

I have previously written about the Autistic Rhizome in the context of neuro-anarchy. I envision this as an interlinked network with no point of origin. Each point of interest on this map of communities is linked with the others but independent in the sense that they do not require each other to exist. I explored this in an article for Stimpunks Foundation.

The Autistic Rhizome is decentralised. It has no goal other than mutual knowledge exchange and support. Rather than creating colonised communities engaging in separatism, they are nomads. Within the Rhizome, we explore the topography of neurodiversity while respecting each culture that we encounter. In my opinion, the evolution of an Autistic Rhizome is the first proper step towards a neurocosmopolitan society.

We can create communities through realising the connections in our individual nature.

This allows us to begin dismantling the structures we have built (out of necessity) using the masters tools. We can create a new community away from the colonial influence of our normative society. In this sense, these growing networks are queering the meaning of community through the rejection of hierarchy and the balance of power.

Like any new endeavour, it has the potential for mistakes to be made. One must accept that exploration comes with a few wrong turns, but as long as mistakes can be corrected in good faith, we can create a new kind of community.

This is the thesis of neurofuturism. To create a new culture and community.

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Reclaiming Neurofuturism: Neuroqueering knowledge and its production

In a previous article, I discussed the idea of verisimilitude. I discussed how we might never find an objective truth that explains neurodivergent experience. In fact, we might never find one for human experience on the whole. What we can do is seek a falsehood that is close enough to truth to seem true, it has verisimilitude.

One of the flaws in this is the arborescent approach to knowledge creation that this takes. We are constantly building on previous knowledge. Our foundations are rooted in the past. However, if we accept the verisimilitous nature of all knowledge pertaining to neurodivergent experience, then we must accept that there is a good chance that prior knowledge is a falsehood that seems true.

This presents an issue. If the foundations we branch out from are unstable, the metaphysical structure of our knowledge is one doomed for collapse. I believe we need to move beyond the roots and instead create new knowledge, not by abandoning the past, but by utilising it in a way that no single part depends upon another.

One might pontificate that knowledge exists to evolve, but what if we approach knowledge as being independent of its purpose. Rather than measuring knowledge by its reiteration and resilience in the fave of scrutiny, we can view it as interconnected while retaining its independence.

Can we create new knowledge through linking networks of knowledge that are seemingly unrelated? How might one approach the creation of knowledge in a way that does not depend on antiquated thought?

Knowledge is a by-product of thought, which itself is a by-product of the bodymind. If we desire to queer knowledge, we must first queer the bodymind. This requires us to abandon the politics of our own existence and instead explore our own reality.

Through exploration of the Self, we are able to tweak and alter the bodymind. This, in turn, will alter our thoughts and, thus, knowledge production. By abandoning the arborescence of our own thoughts, we can abandon the roots of antiquated knowledge.

To liberate humanity, we must liberate thought and knowledge. We must escape the branching nature of our current system of knowledge and instead explore the coherence of our entire knowledge base rather than focusing on small details. When we can embrace the connectivity of everything, we can wield knowledge as the tool it should always have been.

Normative society has standardised thought to control the direction of knowledge. To be free of normativity, we must first free our thoughts and knowledge.

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Neuroqueer: Neuro-anarchy and the Chaotic Self

This article was co-authored by David Gray-Hammond and Katie Munday

Throughout this blog series, we have been discussing Neuroqueer Theory and the ways that it can be applied to people’s lives. We have considered gender identity, depathologising psychiatric conditions, and how one might embody their psychological wellbeing, to name but a few. In wider work, David has discussed neurofuturism and moving away from normative thinking. In this article, we would like to introduce the concepts of neuro-anarchy and the Chaotic Self to the discussion of Neuroqueer Theory, and consider how the two synergise with each other.

What is Neuro-anarchy?

Neuro-anarchy is the removal of oneself, either consciously or unconsciously, from the neuronormative standards that exist within one’s own neuroculture. Using the Autistic community as an example, our culture has its own set of rules and normative values, as does any cultural group; neuro-anarchy is a radical decentering of normativity. If we consider that our sense of Self is built upon the values and opinions or our prevailing culture, neuro-anarchy invites us to step outside of those values and carve our own space within which to form an identity. Munday (2022) discusses neuro-anarchy in the context of Autistic shielding.

What is the Chaotic Self?

In A Treatise on Chaos Gray-Hammond (2023) discusses the idea of our sense of Self being a fluid and moving entity, constantly changing and reshaping as we receive new information and interact with the environment. He discusses how to queer one’s neurology, we must first consider that changes we make are unable to be reversed. In this sense, the Self tends towards being a chaotic system that is in a constant state of change. You can’t unqueer a queer mind.

What is the relevance of these to each other?

Neuro-anarchy is an act of protest, it is how one neuroqueers in spaces that should belong to us but instead remain external in our relationship to who we are. Neuro-anarchy arises from a level of cognitive dissonance that presents when a person finds themselves an outsider in a group that they should fit into.

In response to this cognitive dissonance, we create our own individual values and concept of the Self that allow us to reconcile the dysphoria of rejection, and bring peace to a bodymind that recognises the fractures and contradictions in it’s own cultures and communities.

Neuro-anarchy invites us to step back from the minutia of community advocacy and consider how one’s community and culture fits into the world’s wider picture. This is where the Chaotic Self comes in. The concept of the Chaotic Self tells us that wider power dynamics and systems within our world inform the discourse around our identities, which in turn become a part of the Self.

A neuro-anarchistic approach to one’s identity teaches us to decentralise all systems of power and instead look to how the individual can build a community from the shared subjective experiences that constitute our culture.

As the individual Self grows and changes, so too must our community.

By stepping away from the power structures that exist in our society, we are able to pick and chose the concepts that form the Self. This in turn allows us to effectively neuroqueer through the subversion of all expectation, and not just those that our community desires us to subvert. Neuro-anarchy allows us to move fluidly throughout cultural identities, and internalise the concepts from within them that we feel are most relevant to us.

By understanding the nature of neuro-anarchy and the Chaotic Self, we are able to see ourselves not as a collection of identities but instead a single Self that belongs (to some extent) to multiple cultural groups. We are able to subvert identity politics while holding an awareness of where we do or do not have privilege.

If neuroqueering is a liberatory act, then neuro-anarchy is the tool we use for that act. The Chaotic Self, then, is the overarching way of understanding one’s sense of Self throughout the process of neuroqueering. It allows us to embrace the fact that once queered, the bodymind cannot return to it’s previous state. By embracing this we transcend normative values and enter a world of infinite possibility (Gray-Hammond, 2022).

References

Gray-Hammond, D (2022) The infinite and I: Embracing my Neuroqueer Self. Emergent Divergence. https://emergentdivergence.com

Gray-Hammond, D (2023) A Treatise on Chaos: Embracing the Chaotic Self and the art of neuroqueering. Independently Published.

Munday, K. (2022) Counterculture: Autistic shielding and neuro-anarchy. Autistic and Living the Dream. https://autisticltd.co.uk

Reclaiming Neurofuturism: Ontological perspectives of neurodiversity

For time immemorial the nature of human consciousness has been discussed and debated. I have spoken at length about neuronormativity and neuroqueer theory, positioning the Self as a moving target that grows and changes dependent on it’s cultural and environmental context, socially constructed by those we interact with. I refer to this as the Chaotic Self, a Self that is constantly changing and of no fixed value. The issue with this is that it contradicts one of the fundamental ways that those outside of neurodiversity paradigm based communities understand minds that differ from normative values.

The pathology paradigm posits an essentialist worldview, that you are born either normal, or abnormal, and that if you were not born abnormal, then it is due to the development of a pathological occurrence. According to this view their are no routes to atypicality outside of the circumstances of ones birth or illness.

This has itself given birth to medical models of neurodiversity which are themselves of a realist nature. Medical models view truth as objective and fixed, awaiting our discovery. There is no space for subjective experience and opinion in the medical world. Despite this, there is currently no meaningful, objective relationship between our physical brain and our experience of the world. The medical model deals in objective facts such as the DSM 5 diagnostic criteria for autism and ADHD, these diagnostic criteria are far more open to interpretation than we are led to believe.

They issue with diagnostic and medical models is that they suggest neurodivergence is a fixed and immutable fact. One is either neurotypical or neurodivergent, with no recourse for movement across the metaphorical boundaries. The truth, as ever, is far more complicated. The foundation of neuroqueer theory, for example, is that one can queer your neurology, with neurotypicality being a performance rather than a natural kind.

According to neuroqueer theory, it is possible for a person who performs neurotypicality to alter their mind in a way that they become neurodivergent. Under medical models this is disregarded as inducing pathology of the mind. The realism of medical models suggests that if one does not fit into contained and objective criteria then one is not neurodivergent.

From a relativistic perspective this is patently absurd. Every human mind is different. Relativism underpins the neurodiversity paradigm in the same way that realism does the pathology paradigm. neurodiversity models recognise that no two human brains are the same, and while some groups may have shared culture and experiences, we have our own subjective truths that are influenced by the cultural context of our existence and our interaction with others.

Therefore, neurodivergence is not unique to that which can be measured by diagnostic criteria, but instead a disengagement from normative values and performance. To become neurodivergent is to be liberated from the cult of normality. We escape the status quo by escaping the normatively constructed Self.

This raises the question of how one builds community and culture from the idiosyncrasies of individual humans. I would argue that in neurodivergent communities we form connection based on phenomenological introspection. Through our exploration of individual experiences we find the places where our lives cross and recross. We find the shared paths we have taken while acknowledging the paths we walk separately.

This is why understanding intersectionality is so very important, it allows us to recognise that we have just as many individual experiences as we do shared ones. It allows us to address the subjective nature of how we experience and embody the Self.

In my opinion, to embrace the neurodiversity movement is to let go of the notion of objective truth. To embrace the diversity of human cognition and embodiment is to liberate oneself from the standardised measurement of consciousness. It is to recognise that where shared experience creates identity-based communities such as that of the Autistic community, our subjectivity and solipsistic nature is what creates the diversity of the human population.

Thus, neuroqueering is an essential practice to the survival of the human species. A diverse species is a healthy species, and where we have too much homogeneity it is necessary to queer ourselves and create heterogeneity.

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