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What is it about ABA that is so harmful to Autistic people?

There are many things within this world that can cause controversy in minority communities. One less discussed in mainstream society, but of significant interest to the Autistic community is Applied Behaviour Analysis (ABA). Nothing sets Autistic Rights activists ready to march into battle quite like the normative violence of behaviourism.

So, what is ABA?

ABA is based on a school of psychological thought known as behaviourism. Behaviourism itself being a social science that uses observable behaviour to investigate psychological values of an organism. Behaviourism is in a lot of things that we interact with. In fact, if you own a dog, you have probably already encountered it.

ABA, then, is an applied version of this science. It uses functional analysis of an individuals behaviour to identify the function of a given behaviour with the intention of identifying target behaviours to be extinguished or reinforced.

This is done through the use of positive reinforcement (for example, rewarding a behaviour) and aversive techniques ranging from planned ignoring to the use of electric shocks. The aim of these techniques is to make an individual conform to societies normative standards of behaviour, which is why it’s relevant to Autistic individuals.

Many people state that Lovaas created it after his work on The Feminine Boy Project (Gay Conversion Therapy), which utilises the same techniques. Technically, this is true, although it would be more accurate to say that Lovaas took a technique that already existed and made it much more sadistic. Behavioural Analysis was, in fact, seen as early as 1947 within the context of animal behaviourism in Arkansas.

Lovaas was famously known for stating that Autistic people looked like humans, but were more akin to something sub-human that needed to be constructed into an acceptable form. It is unsurprising then that much of his work on ABA was informed by the sadistic practice of Gay Conversion Therapy.

Back to the point

History aside, ABA is a harmful practice, and it’s particularly offensive when we consider its use among neurodivergent people.

Our current society is built from the bottom up. The economic policies and cultural practices in many parts of the world are built on a foundation of colonialism. This has led to a prominent neoliberal attitude that individuals should be self-reliant producers of profit that adhere to certain standards of behaviour. These standards can be considered the basis of normativity, although more specifically we need to talk about neuronormativity.

What is so dangerous about neuronormativity is that it requires us to embody our neurology and experience of the world in very specific ways. Any deviation from a perception of ‘normality’ is seen as abberant and in need of correction. It has significant links to other forms of oppression, such as white supremacy and queerphobia.

How does this relate to ABA?

The purpose of ABA is to assimilate an individual into these neuronormative performances of behaviour. It does not take regard to whether this performance is comfortable for the individual, and it takes little account of the damage that the process of forced assimilation can have on a person.

Autistic people are monotropic. We have minds that prefer singular, hyperfocused attention tunnels. Our cognitive resources preferentially assign themselves to one thing at a time, building inertia that can make rapid transition between points of focus a traumatic experience.

This presents an issue when we consider that a neuronormative approach to the world is designed for a polytropic mind that can assign its cognitive resources across multiple streams of focus simultaneously without building too much inertia. ABA encourages Autistic people to live polytropically.

Why is this a problem?

Autistic people who are forced to behave and live polytropically are at risk of a phenomenon called monotropic split. This is caused because a monotropic mind can not regulate its attentional resources across multiple streams. Monotropic split can ultimately lead to a range of mental health concerns and even suicidality.

ABA creates this issue for many of the Autistic people who go through it.

This is why I view ABA as a tool of normative violence. It is an aggressive tool of forced assimilation that does not care for the harm it does. Many ABA practitioners will claim that ABA is no longer harmful, but while its goals remain to force conformity, it will create this issue of monotropic split.

In order to create happy and healthy Autistic people, we need to support them to be as independent as possible in the world while living in a way that is comfortable for them. This means allowing Autistic people to be interest-led, and to regulate their senses and emotions naturally rather than hide their struggles for the comfort of others.

I am not a fool. ABA won’t be ended overnight. It is a billion dollar industry that uses lobbying and misinformation to maintain its hold over stakeholders. In the short run, we have to focus on harm reduction efforts, which can range from supporting survivors to sewing the seeds of dissent amongst its practitioners.

We can not and will not stop speaking out against it. Slowly but surely, we can shift the power imbalance. However, we have to recognise that while the foundation of colonialism exists, practices like ABA will remain an issue for those who do not adhere to the cult of normality.

Neurodivergence, disability, and the politics of existence

Neuroqueer theory has been the single most important idea to emerge from the academic circles of neurodiversity into my own life. I say that with a hint of irony; neurodiversity is my life. It’s all our lives. Neurodiversity is a fact of human existence. Yet, to not perform to a cultures normative standards, neurotypically, is a disability.

The cold, hard truth of being neurodivergent is that you are disabled. This doesn’t mean that there is an issue within your body that requires fixing. It doesn’t mean that you are worth less. It does mean that the world will be a harsh place.

This is particularly problematic for those who engage in neuroqueering. The further away from that pinnacle performance of neurotypicality that we get, the more labels of pathology that society will paste onto us. To diverge from normality is to have a relationship with the world that is, at best, indifferent to your pain and, at worst, violently hateful.

In my own opinion, this has to do with the way that society frames deviation from the status quo. As soon as we decondition ourselves or fail to assimilate, we are dehumanised and discriminated against. We are told that our experiences are not valid and that our pain is our own fault.

This neatly absolves the powers that be of any responsibility for the suffering they inflict on neurodivergent people. Disability (to my mind) arises not only from obstacles in the environment but also from volatile and harmful relationships within that environment.

One of the most disabling things about being neurodivergent is the way that society frames our existence.

Our existence is able to be framed as such because there is a distinct power imbalance in our world. It’s not enough to tackle ableism and autistiphobia. We must also dismantle the bigotry and oppressive system that have infected and affected our society en masse.

You can not tackle disability as an issue without tackling white supremacy, homophobia, transphobia, or any form of bigotry. We have to decolonise in order to make the world accessible. All of these forms of hatred and discrimination play a role in the way that neurodivergent people are framed by society.

This is the nature of difference. Because society has a toxic relationship with difference and diversity, we are disabled for not assimilating.

The time has come to not just queer ourselves, but queer society. By abandoning the false hierarchies created by our capitalist systems in the west, we can embrace the anarchy of bringing the fringe to the centre. We can start this in our own communities by Embracing neuro-anarchy and breaking free of the normativity within our own circles.

The first step to decolonisation is to look inwards at our own environment.

We need to consider what parts of neurodivergent culture are helpful and what parts have arisen from the politicising of our existence. We can give rise to a society that is kinder to all, a world where difference is not a disability, but the first step is to realise our own role in that oppression.

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Neurodivergence and Normality: The meaning of words

“I understand now that boundaries between noise and sound are conventions. All boundaries are conventions, waiting to be transcended. One may transcend any convention if only one can first conceive of doing so.”

Cloud Atlas by David Mitchell

The neurodiversity movement is predicated on three deceptively simple ideas:

  • There are as many variations of the human mind as there are humans.
  • Those who can not perform to neurotypical standards are neurodivergent.
  • Neurodivergent people deserve equity and inclusion in our shared environment.

Upon this premise, an entire collective culture of shared knowledge and community-connectedness has blossomed. Creating spaces where neurodivergent people have, for the first time, felt they belong. For many of us, including myself, it has been not just life-changing. It has saved us from an early demise.

But what is neurotypicality? What is it exactly that we diverge from?

Neurotypicality is a performance. It is a set of normative ideas that we have come to accept as “normal”. While those normative ideas my change based on the local environments culture, the truth remains that the word “normal” has been weilded as a weapon to justify the dehumanisation and oppression of all who can not, or will not, assimilate.

Normality is itself a social construct. It is an abstract entity. It is not measurable or tangible. While one could argue that normality is a word that represents that which most have on common, we could just as easily have given it the opposite meaning.

All words are essentially meaningless. The objective truth of a words meaning is something of a social contract between ourselves and those around us. For the context of this essay, let us take normality or “normal” to mean the most commonly found attributes of a given population.

In this sense, Autistic and otherwise neurodivergent people are abnormal. We have diverged from normality, representing what is framed by wider society as an aberration in the status quo. On the basis of this, a global industrial complex has risen up in order to not only force our assimilation into normality but also turn that endeavour into a profitable business.

How does one move forward when the world is at odds with your existence?

Even in neurodivergent communities, we frame ourselves through our differences. Celebrating the idea that we are different to that which normativity requires. While their is beauty to be found in such an existence, I believe that we must transcend the limitations of normality. Not through our difference, but instead by our assertion that “normal” does not exist.

We are not different because of our lack of normality. We are different because we embrace individuality and diversity. The difference between normality and normativity is semantic in nature. Normality is the attractive package that is gifted to us to take into our home. We must challenge normativty at its core and not at its surface.

To move into a post-normal society, one must first be able to conceive of such a place. We must establish new boundaries that turn the sound of normality into background noise. Drowning out normative beliefs with the voices of those that refuse to assimilate.

This, of course, presents a problem for not just neurotypical society but also neurodivergent communities. Even in our own culture, there exists a kind of essentialism in the idea that you are either neurotypical or neurodivergent. In a post-normal world, words like “divergent” and “typical” become redundant. If we have no preconceived notions of normality, then there is no need for a counter-culture. There is nothing to assimilate into.

Such a world would allow for the emancipation of neurodivergent communities but fundamentally alter the meaning of what it means to be neurodivergent. We would not be connecting over our differences but rather our shared culture. Such culture is difficult to quantify at this stage because we still have a long way to travel.

For now, this kind of neurofuturism may sound naively utopian, perhaps even dystopian, depending on your outlook. If I can be sure of one thing, it’s that it’s time for us to conceive of a world beyond normality. It is the first step on a journey toward a world where the oppression of neurodivergent people is no longer possible.

The privilege of being neuroqueer

I have, for some time now, discussed neuroqueer theory (as conceptualised by Nick Walker and her colleagues), adding my own takes to the emerging liberatory thoughts of a blossoming post-normal era. I consider myself neuroqueer. Not only because of the relationship between my queerness and my neurodivergence, but also because of the relationship between my Self and normative society.

In my book A Treatise on Chaos, I discuss what I have conceptualised as “the Chaotic Self”. Rooted in the idea that all things tend towards chaos, ever changing, unable to unexperience the events that form our sense of Self. I consider how I have neuroqueered my way to this understanding of myself. What I don’t discuss in that book (although I do discuss in The New Normal) is that I was only able to gain this understanding of who I am through privilege.

Privilege doesn’t necessarily refer to the presence of a benefit. More specifically, it is the lack of obstacles and barriers. I suspect this is why so many people struggle to see their own privilege. Much like the Dunning-Kruger effect, you don’t know what you don’t know. You don’t realise the advantage of a clear path through life if you have never had to take stock of obstacles.

I have queered my neurology in a number of ways. One of those ways was the use of mind-altering drugs. I have no doubt that my privilege is what allowed me to do this with no legal repercussions. I also did not have to deal with abusive family and had a safe home away from those who would exploit my journey of Self discovery. I had fewer obstacles to my journey of understanding and growth than those with less privilege.

Neuroqueering requires an element of authenticity in one’s embodiment of Self. It’s necessary to manifest your truth through action, but what if doing so could place you in danger? For BIPOC or other marginalised groups, authenticity can be life-threatening. Authentic embodiment of a marginalised identity is often criminalised or pathologised. Both can land you in prisons or institutions, in some places, it can be met with violence.

Those of us proudly flying the neuroqueer banner need to realise something important. Neuroqueerness is not an individual endeavour. It requires societal evolution. To be neuroqueer requires us to use our authentic embodiment of Self to drive a change that makes a post-normal society safe for all of us. Neuroqueerness that is only accesible to the few is not true neuroqueerness. To be neuroqueer is to fight for the liberation of all humans.

As we move toward a world where normative violence is unacceptable, we need to be prepared for the pushback. Those who benefit from normativity and oppression will not support the redistribution of power. For those with less privilege, this fight could be deadly. As we liberate ourselves, we must make sure to liberate those for whom the barriers to freedom are greater.

I am neuroqueer, and I will fight for your eight to be neuroqueer too.

Radical Advocacy: Being an advocate in a hate filled world

Recently I have found myself considering the direction that my advocacy is taking. I have found myself reading extensively on “autism theory” and, on the other hand, writings by actually Autistic authors.

At first I felt broken by what I had realised. Our world is built on a paradigm that by design oppresses anyone outside of it’s cultural standards of normal. What can we do about such a hate filled world? How can a minority group take on a system that is set up to silence them?

The answer is the opposite of hate. Which some might call love, but I find that utterly reductive and terribly clichéd. So if love is what drives us to stand up for another, then advocacy is the tool that we use to do so.

Where the hateful and oppressive masses sit in silent glee as all that is not “normal” is destroyed and hidden away, a self-advocating culture amplifies the voices of those who may otherwise go unheard.

Some people think that the job of an advocate is to give the oppressed a voice, but this is not true. An advocates job is to listen, and communicate what they hear in a way that can no longer be ignored.

Advocacy isn’t always about representing another person. Often as advocates we have to sit with ourselves and listen to our own inner voice. What helps us? How did we unlearn that? An advocate must be able to reflect on their own experience, and how that impacts the people they are standing up for.

The most radical thing an advocate can do, however, is to unlearn the systemic lies that society has drilled into us since birth. As Autistic advocates, the greatest lie we have been raised with is that society has a standard that we must adhere to.

There is no standard, there is no normal. This is a mistruth used to keep us static. Our society desperately wants our silence, so it fools us into thinking that we diverge from “normal”, when the truth is that what we truly diverge from is the dogma of a world that craves our indifference.

From a young age we are taught that our difference makes us broken, a shameful secret to be remedied or hidden from sight. An advocate must stand tall in the knowledge that our diversity is what makes us beautiful.

That, is what can combat a hate filled world. Not love, but advocacy that guides the world into seeing the beauty in our differences, instead of trying to eradicate them.

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