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Spectrum 10k is still not acceptable, here are three reasons why

It is perhaps fitting that Spectrum 10k has reappeared during the dark months of the year. Much like the cryptids of antiquity, it inspires fear in our community, and obscures itself from the sight of all who attempt to quantify it’s nature.

There are no “versions” of the truth. Truth is a singular point, constructed from a collective of subjective experiences. So when the collective experience of the Autistic community tells you that S10k is the wolf among the lambs, we beg you to take heed.

There are three points I want you to consider before handing your DNA over to these malefactors:

1. There is no acceptable version of this study in it’s current form.

Regardless of how they dress it up, no matter how much they polish this particular turd, this is still the starting point of a eugenics program. They want to find the genetic root of autism, and by doing so, open the door to pre-natal testing. If you don’t realise what this means, please Google the amniocentesis test for down-syndrome, and how it has decimated the right of this minority to exist.

2. They are exploiting Autistic people to conduct the newly required “consultations”.

The people conducting these consultations want Autistic people to rehash our concerns for them, concerns that were so important to them that they didn’t take the time to listen the first time. Not only do they want us to repeat ourselves, I very much doubt this traumatic experience will come with any recompense. They also want us to do this without shouting them down. Perhaps, if they don’t want to be shouted down by Autistics, they should stop running projects that could lead to our eradication.

3. They are using token Autistics to manipulate us into engaging.

The fact that they are employing Autistic people to lead consultations is not an accident. It is a direct attempt to tug on our heart strings, and present an air of acceptability to the project. It is my belief that they hope we will believe that they’ve changed, and that it’s different this time, and that we will be more willing to engage with them.

The truth is that they are still using the same misdirection and subterfuge that they always have. Just because the nice man offers you candy, doesn’t mean you should get into the windowless van.

We as a community need to boycott not just this project, but all projects by those involved in the future. If we can show people that their careers are in jeopardy, they will be less likely to make this attempt in the future.

You may feel my words are hyperbolic in nature, but the Autistic community is my chosen family, and when someone threatens my family, I will use my words as weapons. Autistic people have a right to exist, and this flagrant example of ableism and disdain for our existence will become a significant part of our history.

It’s up to you to decide which side of that history you want to be on.

This one’s for you Spectrum 10k

I am angry. I am beyond angry.

I am angry, tired, sad, stressed, and quite frankly, sickened to my core.

Since S10k was announced, I have watched as their blithe request for our DNA has traumatised a community that I love beyond measure.

My friends and colleagues have poured their heart into fighting your (not so covert) eugenics program. I have shared in their triumph, I have shared in their sadness.

I have shared in their horror.

You, S10k, have traumatised an entire minority group. You have taken our emotions, and laid them bare for the vultures.

Enough is enough. Your blatant attempt to pacify us with generic platitudes and promises of doing better are not enough.

We will not stop, we will not back down.

This fight has taken touch from us, but we continue to fight so that a future generation of Autistics may exist.

We fight so that future generations don’t have to.

I refuse to stand by while people I care about suffer at your hands. Your team, S10k, are a constant threat to our wellbeing.

We will interrupt your attempts to erase us.

We are proudly Autistic, not diseased, not damaged. We are the answer to the question “what’s the difference?” We are a beautiful minority.

We are not your play things.

Apparently Autism needs preventing?

The world is not okay.

We are not okay.

Autistic people are not okay, S10k has served as a stark reminder that we are treated as a burden upon not just the people that we love, but society as a whole.

Autistic people are subject to woefully inaccurate and outdated stereotypes that do a great deal of harm to us as a community. For a long time the Autistic community has pushed back against the idea of a linear spectrum, with the “severely disabled” at one end, and bright young mathematicians at the other end. Despite this we still have the likes of Simon Baron-Cohen espousing the need to preserve the young men who have mathematical skill, should a cure or pre-natal test be developed. This says a lot about his views on Autistic people as a whole. It’s eugenics, funded by a capitalist society that decides the value of our lives based on our financial productivity. Eighty years since Hans Asperger “saved” the useful Autistics, while dispensing the lives of those he deemed unworthy, we are still fighting for the right of all Autistics to exist, regardless of special skills or capitalist worth. In 2021 are we witnessing Simon Baron-Cohen morphing into the Hans Asperger of the 21st century?

The truth is, Autistic people are more than a medically diagnosed group. We are an identity-based minority, with a rich culture. A culture that we are excited to share with the world, even in the face of the worlds abject hatred of all that diverges from the neuromajority.

We are everywhere, we are your doctors, your lawyers, your shopkeepers, your shelf-stackers. We entertain you as artists, actors, directors. We are your friends, family, neighbours. Even if we aren’t yet identified (largely thanks to those inaccurate stereotypes skewing the diagnostic process).

We are human.

We have thoughts, feelings, emotions.

We have deep empathy and compassion. It can be overwhelming. S10k is overwhelming, which is how it felt last week when Spectrum 10k was announced, by non-autistic researchers, led by two non-autistic men who have strong links to organisations abhorred by the Autistic community, and supported and promoted by white men, cure culture, and an all round attitude of being pro-eugenics.

S10k has been peddled by people who are not autistic, don’t understand autistic culture, and don’t even understand the nature of this research. Indeed, nobody understands the nature of this research because of the secretive nature of those in control. The truth has been obfuscated in an attempt to gaslight Autistics into giving their DNA to those with ill intent, or for future use by those who mean us harm.

“There’s no way that we can ever say that a future political leader or a scientist won’t use the research for eugenics.”

Simon Baron-Cohen

Are we really at the point, in 2021, where we have to beg for our right to exist?

Because if that is the case, we are collectively pleading with you to boycott this study.

How can we ignore the fact that Baron-Cohen and Gerschwind have previous ties to Autism Speaks and Aims2Trials. Both of these groups are known to either look for a cure, or fund those who are.

Why are we pleading? The effects of this betrayal by society have taken a huge toll on our collective mental health. In the week since this has launched, the damage that has been done has been immense, imagine what further damage this study could do if left to fulfil it’s aims.

The study claims to be looking into the causes of poor wellbeing in Autistics. They already know what causes it, and it’s not in our DNA. It is, however, quite possible that the thought of our parents having the choice to abort us does cause the poor wellbeing they claim to be so invested in preventing.

Imagine what the Autistic community could do with that money; We could train the whole of the U.K on improving mental wellbeing for Autistics, training on supporting us in a disabling environment.

Are you Autistic? What would you do?

Will you stand by while our DNA is misused by those who seek to destroy us?

Please, do not give your DNA to these people. Do not allow them to destroy the rich culture that we have spent decades cultivating and nurturing.

Sincerely,

The Autistic Community.

This article was a collective effort by the team at Boycott Spectrum 10k and the Autistic community at large.

Please join us Twitter tonight at 7pm BST by following the link below.

@BoycottSpect10k

To read and sign the full statement against S10k, click here.

Untitled poetry regarding S10k

Written anonymously by a friend

On the 24th august an announcement was made
Alarm bells rang as a friend was disdained

On mainstream media on a pedastool
Research was announced treating us like we are fools

Processing began…. Numb, shutdown, uncertainty
Then came the realisation, this was aimed at me

A direct insult, a direct threat,
to me, my children and those I respect

Anger and tears, meltdowns took over
Tears in the car, crying over and over

I think of my children so innocent and pure. We have to protect then… keep the scientist from the door

Autistic communities are loyal, fierce and strong

We will keep fighting, you won’t silence our song

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